Dataset Information

Less than five is less than ideal: replacing the "less than 5 cell size" rule with a risk-based data disclosure protocol in a public health setting.

ABSTRACT:

Setting

The Winnipeg Regional Health Authority (WRHA) is one of the largest and most diverse health regions in Canada. Within the WRHA, the Population and Public Health (PPH) Surveillance Team provides epidemiological support across a variety of public health service areas.

Intervention

We developed and deployed a risk-based data disclosure protocol that balances the need to share public health surveillance data with the need to protect personal health information.

Outcomes

Unlike the conventional data disclosure standard adopted in Manitoba (suppress cell sizes ImplicationsIn challenging the "cell size less than five" rule, this project is an example of how a scientifically based data disclosure protocol can support a public health organization in meaningful sharing of population health data with community partners and the public. This helps ensure that program and policy responses are empirically based, strategically focused, and cross-jurisdictionally coordinated.

SUBMITTER: Wilkinson K

PROVIDER: S-EPMC7501321 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature

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Publications

Less than five is less than ideal: replacing the "less than 5 cell size" rule with a risk-based data disclosure protocol in a public health setting.

Wilkinson Krista K Green Christopher C Nowicki Deborah D Von Schindler Christina C

Canadian journal of public health = Revue canadienne de sante publique 20200311 5

<h4>Setting</h4>The Winnipeg Regional Health Authority (WRHA) is one of the largest and most diverse health regions in Canada. Within the WRHA, the Population and Public Health (PPH) Surveillance Team provides epidemiological support across a variety of public health service areas.<h4>Intervention</h4>We developed and deployed a risk-based data disclosure protocol that balances the need to share public health surveillance data with the need to protect personal health information.<h4>Outcomes</h4 ...[more]

PMID: 32162281

Similar Datasets

Project description:ImportanceTransparency of industry payments to physicians could engender greater public trust in physicians but might also lead to greater mistrust of physicians and the medical profession, adversely affecting the patient-physician relationship.ObjectiveTo examine the association between nationwide public disclosure of industry payments and Americans' trust in their physicians and trust in the medical profession.Design, setting, and participantsSurvey study using difference-in-difference analyses of a national longitudinal survey comparing changes in states where industry payments were newly disclosed by Open Payments with changes in states where payments information was already available because of state sunshine laws. The US population-based surveys were conducted in September 2014-shortly before the initial public disclosure of industry payments-and again in September 2016. Final analyses were conducted September through December 2018. Participants were adults 18 years and older (n = 1388).ExposuresNational public disclosure through Open Payments of payments made by pharmaceutical and medical device firms to physicians.Main outcomes and measuresWake Forest measure of trust in one's own physician and Wake Forest measure of trust in the medical profession.ResultsOf the 3542 original survey respondents, 2180 (61.5%) completed the second survey 2 years later, and 1388 named the same most frequently seen physician in both surveys. The mean age of respondents at the time of the first survey was 53 years, and 749 (54.0%) were women. Race/ethnicity was white in 76.6% (1063 of 1388) and non-Hispanic black in 8.0% (111 of 1388). Public disclosure of payments was associated with lower trust in one's own physician regardless of whether respondents knew their physicians had received payments (decrease in Wake Forest measure of trust in one's own physician of 0.56 point; 95% CI, -0.79 to -0.32 point; P < .001). Open Payments was also associated with lower trust in the medical profession (decrease in Wake Forest measure of trust in the medical profession of 0.35 point; 95% CI, -0.58 to -0.12 point; P = .004).Conclusions and relevanceNationwide public disclosure of industry payments may be associated with decreased trust in physicians and in the medical profession. More judicious presentation of payments information may counteract unintended negative trust and spillover consequences of public disclosure.

Dataset Information

Less than five is less than ideal: replacing the "less than 5 cell size" rule with a risk-based data disclosure protocol in a public health setting.

Setting

Intervention

Outcomes

Publications

Less than five is less than ideal: replacing the "less than 5 cell size" rule with a risk-based data disclosure protocol in a public health setting.

Similar Datasets

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