Life course changes provoked by chronic disease: A study on everyday life for patients with systemic lupus erythematosus.

ABSTRACT:

Objective

This study examined patients with systemic lupus erythematosus (SLE) as a means to explore the impacts of chronic disease on life courses.

Methods

A semi-structured in-depth interviews were conducted with nine patients in China in 2017; participants were included based on their having or having had facial butterfly erythema.

Results

The study focused on both the disease's impact on the patients' health and on their daily lives. Four core themes emerged: visible changes in the patient's bodies, social dilemmas, "the encouragement of disease", and a new perspective on the relationship between disease and health. One important finding was that the occurrence of a chronic disease did not have only negative repercussions; some patients felt that there were advant

SUBMITTER: Huangfu Z 

PROVIDER: S-EPMC7501471 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature