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The Impact of Sex and Gender on the Multidisciplinary Management of Care for Persons With Parkinson's Disease.

ABSTRACT: The impact of sex and gender on disease incidence, progression, and provision of care has gained increasing attention in many areas of medicine. Biological factors-sex-and sociocultural and behavioral factors-gender-greatly impact on health and disease. While sex can modulate disease progression and response to therapy, gender can influence patient-provider communication, non-pharmacological disease management, and need for assistance. Sex and gender issues are especially relevant in chronic progressive diseases, such as Parkinson's disease (PD), because affected patients require multidisciplinary care for prolonged periods of time. In this perspective paper, we draw from evidence in the field of PD and various other areas of medicine to address how sex and gender could impact PD care provision. We highlight examples for which differences have been reported and formulate research topics and considerations on how to optimize the multidisciplinary care of persons with PD.

SUBMITTER: Gottgens I

PROVIDER: S-EPMC7530641 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature

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The Impact of Sex and Gender on the Multidisciplinary Management of Care for Persons With Parkinson's Disease.

Göttgens Irene I van Halteren Angelika D AD de Vries Nienke M NM Meinders Marjan J MJ Ben-Shlomo Yoav Y Bloem Bastiaan R BR Darweesh Sirwan K L SKL Oertelt-Prigione Sabine S

Frontiers in neurology 20200918

The impact of sex and gender on disease incidence, progression, and provision of care has gained increasing attention in many areas of medicine. Biological factors-sex-and sociocultural and behavioral factors-gender-greatly impact on health and disease. While sex can modulate disease progression and response to therapy, gender can influence patient-provider communication, non-pharmacological disease management, and need for assistance. Sex and gender issues are especially relevant in chronic pro ...[more]

PMID: 33071952

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Project description:Background:Parkinson's disease is a neurodegenerative condition with both physical and mental consequences that affect many aspects of everyday life. Persons with Parkinson's disease and their care partners want guidance from healthcare services in order to develop skills to adjust to life with a long-term condition. The Swedish National Parkinson School is a dyadic self-management programme to support both persons with Parkinson's disease and care partners. Objective:To assess the outcomes of the Swedish National Parkinson School as reported by participants. Design:A quasi-experimental case-control study in clinical care using self-reported questionnaires. Participants. Swedish National Parkinson School was offered by health care professionals working in clinical care. Participants in the programme were also asked to participate in the study. A matched control group was recruited for a comparison of findings. In total, 92 persons with Parkinson's disease and 55 care partners were included. Settings. Five Swedish geriatric and neurologic outpatient clinics. Method:Data were collected during 2015-2017, before and after participation in the National Parkinson School or before and after seven weeks of standard care. Outcomes were assessed using generic and Parkinson's specific questionnaires. Descriptive statistics were used to describe baseline characteristics. Mann-Whitney U and Chi2 tests were used to test for between-group differences and within-group differences were tested by the Wilcoxon signed-ranks test. Results:Improvements regarding health status, constructive attitudes and approaches, and skill and technique acquisition were found after the intervention among persons with Parkinson's disease. No changes were found among care partners. Conclusion:The findings indicate that the Swedish National Parkinson School may improve health status and self-management among persons with Parkinson's disease, but further studies are needed to better understand the effects of the programme.

Dataset Information

The Impact of Sex and Gender on the Multidisciplinary Management of Care for Persons With Parkinson's Disease.

Publications

The Impact of Sex and Gender on the Multidisciplinary Management of Care for Persons With Parkinson's Disease.

Similar Datasets

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