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Families' Perception of Classic Ketogenic Diet Management in Acute Medical Conditions: A Web-Based Survey.

ABSTRACT: Objective: To describe families' experiences in managing epileptic patients undergoing ketogenic dietary therapies (KDTs) in acute medical settings. Methods: We conducted a short online survey addressed to the families of patients undergoing a classic ketogenic diet (cKD) for at least three months. The survey was composed of 18 questions exploring the following issues: demographic characteristics, epilepsy diagnosis, ketogenic-diet treatment history, the reason for emergency-ward admission and patient management, surgery-procedure management, and outcomes. Results: A sample of 50 families agreed to participate. Out of 50 patients, 33 (66%) had been undergoing a cKD for more than two years. Fifteen (30%) patients had been admitted at least once to the Emergency Room (ER), and 8.2% had undergone surgical procedures during cKD treatment. The causes of ER admission were the following: seizures, infection, trauma, and gastrointestinal or respiratory problems. In 75% of cases, blood ketonemia was not monitored during ER admission, and according to 46% of responders, the medical staff intervening did not have a basic knowledge of KDTs. Conclusions: According to both our experience and caregivers' reports, it might be useful to search for standardized specific approaches to patients undergoing KDTs in the emergency setting.

SUBMITTER: Pasca L

PROVIDER: S-EPMC7598657 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature

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Families' Perception of Classic Ketogenic Diet Management in Acute Medical Conditions: A Web-Based Survey.

Pasca Ludovica L Varesio Costanza C Ferraris Cinzia C Guglielmetti Monica M Trentani Claudia C Tagliabue Anna A Veggiotti Pierangelo P De Giorgis Valentina V

Nutrients 20200924 10

<b>Objective:</b> To describe families' experiences in managing epileptic patients undergoing ketogenic dietary therapies (KDTs) in acute medical settings. <b>Methods:</b> We conducted a short online survey addressed to the families of patients undergoing a classic ketogenic diet (cKD) for at least three months. The survey was composed of 18 questions exploring the following issues: demographic characteristics, epilepsy diagnosis, ketogenic-diet treatment history, the reason for emergency-ward a ...[more]

PMID: 32987704

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Families' Perception of Classic Ketogenic Diet Management in Acute Medical Conditions: A Web-Based Survey.

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Families' Perception of Classic Ketogenic Diet Management in Acute Medical Conditions: A Web-Based Survey.

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