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Recommendations from Thai stakeholders about protecting HIV remission ('cure') trial participants: report from a participatory workshop.

ABSTRACT: BACKGROUND:The social/behavioral HIV Decision-Making Study (DMS) assesses informed consent and trial experiences of individuals in HIV remission trials in Thailand. We convened a 1-d multi-stakeholder participatory workshop in Bangkok. We provide a meeting summary and reactions from DMS investigators. METHODS:Workshop members viewed de-identified interview excerpts from DMS participants. They deliberated on the findings and made recommendations regarding informed choice for remission trials. Notes and recordings were used to create a summary report, which was reviewed by members and refined. RESULTS:Workshop members' recommendations included HIV education and psychosocial support to establish the basis for informed choice, key trial information to be provided in everyday language, supportive decision-making processes and psychosocial care during and after the trial. Concerns included participant willingness to restart antiretrovirals after trial-mandated treatment interruption, unintended influence of the research team on decision-making and seemingly altruistic motivations for trial participation that may signal attempts to atone for stigmatized behavior. CONCLUSIONS:The workshop highlighted community perspectives and resulted in recommendations for supporting informed choice and psychosocial and physical health. These are the first such recommendations arising from a deliberative process. Although some elements are rooted in the Thai context, most are applicable across remission trials.

SUBMITTER: Peay HL

PROVIDER: S-EPMC7650909 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature

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Recommendations from Thai stakeholders about protecting HIV remission ('cure') trial participants: report from a participatory workshop.

Peay Holly L HL Ormsby Nuchanart Q NQ Henderson Gail E GE Jupimai Thidarat T Rennie Stuart S Siripassorn Krittaecho K Kanchawee Kunakorn K Isaacson Sinéad S Cadigan R Jean RJ Kuczynski Kriste K Likhitwonnawut Udom U

International health 20201101 6

<h4>Background</h4>The social/behavioral HIV Decision-Making Study (DMS) assesses informed consent and trial experiences of individuals in HIV remission trials in Thailand. We convened a 1-d multi-stakeholder participatory workshop in Bangkok. We provide a meeting summary and reactions from DMS investigators.<h4>Methods</h4>Workshop members viewed de-identified interview excerpts from DMS participants. They deliberated on the findings and made recommendations regarding informed choice for remiss ...[more]

PMID: 33165551

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Recommendations from Thai stakeholders about protecting HIV remission ('cure') trial participants: report from a participatory workshop.

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Recommendations from Thai stakeholders about protecting HIV remission ('cure') trial participants: report from a participatory workshop.

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