Dataset Information

Development of an interactive social media tool for parents with concerns about vaccines.

ABSTRACT:

Objective

Describe a process for designing, building, and evaluating a theory-driven social media intervention tool to help reduce parental concerns about vaccination.

Method

We developed an interactive web-based tool using quantitative and qualitative methods (e.g., survey, focus groups, individual interviews, and usability testing).

Results

Survey results suggested that social media may represent an effective intervention tool to help parents make informed decisions about vaccination for their children. Focus groups and interviews revealed four main themes for development of the tool: Parents wanted information describing both benefits and risks of vaccination, transparency of sources of information, moderation of the tool by an expert, and ethnic and racial diversity in the visual display of people. Usability testing showed that parents were satisfied with the usability of the tool but had difficulty with performing some of the informational searches. Based on focus groups, interviews, and usability evaluations, we made additional revisions to the tool's content, design, functionality, and overall look and feel.

Conclusion

Engaging parents at all stages of development is critical when designing a tool to address concerns about childhood vaccines. Although this can be both resource- and time-intensive, the redesigned tool is more likely to be accepted and used by parents. Next steps involve a formal evaluation through a randomized trial.

SUBMITTER: Shoup JA

PROVIDER: S-EPMC7651778 | biostudies-literature | 2015 Jun

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Development of an interactive social media tool for parents with concerns about vaccines.

Shoup Jo Ann JA Wagner Nicole M NM Kraus Courtney R CR Narwaney Komal J KJ Goddard Kristin S KS Glanz Jason M JM

Health education & behavior : the official publication of the Society for Public Health Education 20141119 3

<h4>Objective</h4>Describe a process for designing, building, and evaluating a theory-driven social media intervention tool to help reduce parental concerns about vaccination.<h4>Method</h4>We developed an interactive web-based tool using quantitative and qualitative methods (e.g., survey, focus groups, individual interviews, and usability testing).<h4>Results</h4>Survey results suggested that social media may represent an effective intervention tool to help parents make informed decisions about ...[more]

PMID: 25413375

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Project description:IntroductionSuccessful strategies are needed to address parental vaccine hesitancy, a significant public health issue. The study objective was to assess whether an Internet-based platform with vaccine information and interactive social media components improved parents' vaccine-related attitudes.Study designA three-arm RCT.Setting/participantsThe study was conducted in a large Colorado integrated healthcare organization. Parents were enrolled during September 2013 through October 2015 and followed through November 2016; data were analyzed in 2017. Parents, recruited during pregnancy, were given a survey about vaccine-related attitudes at enrollment (i.e., baseline) and when their child was aged 3-5 months and 12-15 months (Timepoints 1 and 2, respectively). Parental vaccine hesitancy was assessed at baseline.InterventionStudy participants were randomized to the following: a study website with vaccine information and social media components (VSM arm); a website with vaccine information only (VI); or usual care.Main outcome measuresChange in parental vaccine attitudes over time by baseline degree of vaccine hesitancy.ResultsAmong 1,093 study participants, 945 (86.5%) completed all three surveys. Comparing baseline with Timepoint 1 among vaccine-hesitant parents, the VSM and VI arms were associated with significant improvements in attitudes regarding vaccination benefits compared to usual care (VSM mean change 0.23 on a 5-point scale, 95% CI=0.05, 0.40, VI mean change 0.22, 95% CI=0.04, 0.40). Comparing baseline with Timepoint 2 among hesitant parents, the VSM and VI arms were also associated with significant reductions in parental concerns about vaccination risks compared to usual care (VSM mean change -0.37, 95% CI= -0.60, -0.14, VI mean change -0.31, 95% CI= -0.55, -0.07). Self-efficacy around vaccine decision making also improved among vaccine-hesitant parents. No intervention effect was observed among parents not vaccine-hesitant at baseline.ConclusionsAmong vaccine-hesitant parents, an Internet-based intervention improved parents' attitudes about vaccines.Trial registrationThis study was registered at www.clinicaltrials.gov NCT01873040.

Project description:BackgroundEndometriosis is a debilitating and difficult-to-diagnose gynecological disease. Owing to limited information and awareness, women often rely on social media platforms as a support system to engage in discussions regarding their disease-related concerns.ObjectiveThis study aimed to apply computational techniques to social media posts to identify discussion topics about endometriosis and to identify themes that require more attention from health care professionals and researchers. We also aimed to explore whether, amid the challenging nature of the disease, there are themes within the endometriosis community that gather posts with positive sentiments.MethodsWe retrospectively extracted posts from the subreddits r/Endo and r/endometriosis from January 2011 to April 2022. We analyzed 45,693 Reddit posts using sentiment analysis and topic modeling-based methods in machine learning.ResultsSince 2011, the number of posts and comments has increased steadily. The posts were categorized into 11 categories, and the highest number of posts were related to either asking for information (Question); sharing the experiences (Rant/Vent); or diagnosing and treating endometriosis, especially surgery (Surgery related). Sentiment analysis revealed that 92.09% (42,077/45,693) of posts were associated with negative sentiments, only 2.3% (1053/45,693) expressed positive feelings, and there were no categories with more positive than negative posts. Topic modeling revealed 27 major topics, and the most popular topics were Surgery, Questions/Advice, Diagnosis, and Pain. The Survey/Research topic, which brought together most research-related posts, was the last in terms of posts.ConclusionsOur study shows that posts on social media platforms can provide insights into the concerns of women with endometriosis symptoms. The analysis of the posts confirmed that women with endometriosis have to face negative emotions and pain daily. The large number of posts related to asking questions shows that women do not receive sufficient information from physicians and need community support to cope with the disease. Health care professionals should pay more attention to the symptoms and diagnosis of endometriosis, discuss these topics with patients to reduce their dissatisfaction with doctors, and contribute more to the overall well-being of women with endometriosis. Researchers should also become more involved in social media and share new science-based knowledge regarding endometriosis.

Project description:IntroductionSocial media platforms are used by over 4.9 billion people for networking and community building, as well as for healthcare information seeking and decision-making. Most studies investigating the utilization of social media during pregnancy have focused on high-income countries, despite the surge in social media utilization globally. In this study, we analyzed how pregnant women in Ghana, West Africa, utilize Facebook to inform decision-making on their most salient pregnancy concerns.MethodsWe utilized machine learning techniques (Web Scraping and Latent Dirichlet Allocation) to mine and analyze posts from the Ghana-based MidWife Sally Pregnancy School Facebook group between August 16, 2020 and April 29, 2023. Posts were extracted, cleaned, and analyzed using Gensim python library. Topics were generated based on their probabilities and relevance to the study goal.ResultsA total of 3,328 posts were extracted and 3,322 were analyzed after removing 6 empty posts. Seven major topics with listed subtopics were identified: Pregnant (693 posts): personal physiological changes, exercise during pregnancy, medication (e.g., anti-malarials, pain killers) Delivery (367): emergency delivery, vaginal/caesarean birthing, breastmilk production, exercise during pregnancy Pain (350): location of pain and pain relief modalities (e.g., exercise, medication, sleep) Breastfeeding (248): delivery, emergency service, milk production Water (174): cold water consumption, infant feeding (e.g., gripe water, constipation, formula) Sleeping (165): discomfort, sleeping positions, exercise to induce sleep, sleep as a natural analgesic Antenatal (124): fetal growth, progress, hospital selection Of note, content from "Pregnant", "Delivery" and "Sleeping" included mentions of depression, while "Breastfeeding" highlighted cultural approaches to increasing milk production. The sentiment analysis showed that 43.4% of the responses were neutral and primarily focused on seeking information. Negative sentiments, which were more distressing, comprised 46.4% of the responses, while positive sentiments, had a celebratory tone and represented 10.2% of the data.ConclusionSocial media analysis, previously employed in high income settings, can provide impactful, granular snapshots of pregnant people's concerns in the African region, which could be used to inform social media interventions aimed at filling educational gaps in antenatal care for those without adequate healthcare access.

Project description:BackgroundThe development of COVID-19 vaccines has been crucial in fighting the pandemic. However, misinformation about the COVID-19 pandemic and vaccines is spread on social media platforms at a rate that has made the World Health Organization coin the phrase infodemic. False claims about adverse vaccine side effects, such as vaccines being the cause of autism, were already considered a threat to global health before the outbreak of COVID-19.ObjectiveWe aimed to synthesize the existing research on misinformation about COVID-19 vaccines spread on social media platforms and its effects. The secondary aim was to gain insight and gather knowledge about whether misinformation about autism and COVID-19 vaccines is being spread on social media platforms.MethodsWe performed a literature search on September 9, 2021, and searched PubMed, PsycINFO, ERIC, EMBASE, Cochrane Library, and the Cochrane COVID-19 Study Register. We included publications in peer-reviewed journals that fulfilled the following criteria: original empirical studies, studies that assessed social media and misinformation, and studies about COVID-19 vaccines. Thematic analysis was used to identify the patterns (themes) of misinformation. Narrative qualitative synthesis was undertaken with the guidance of the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) 2020 Statement and the Synthesis Without Meta-analysis reporting guideline. The risk of bias was assessed using the Joanna Briggs Institute Critical Appraisal tool. Ratings of the certainty of evidence were based on recommendations from the Grading of Recommendations Assessment, Development and Evaluation Working Group.ResultsThe search yielded 757 records, with 45 articles selected for this review. We identified 3 main themes of misinformation: medical misinformation, vaccine development, and conspiracies. Twitter was the most studied social media platform, followed by Facebook, YouTube, and Instagram. A vast majority of studies were from industrialized Western countries. We identified 19 studies in which the effect of social media misinformation on vaccine hesitancy was measured or discussed. These studies implied that the misinformation spread on social media had a negative effect on vaccine hesitancy and uptake. Only 1 study contained misinformation about autism as a side effect of COVID-19 vaccines.ConclusionsTo prevent these misconceptions from taking hold, health authorities should openly address and discuss these false claims with both cultural and religious awareness in mind. Our review showed that there is a need to examine the effect of social media misinformation on vaccine hesitancy with a more robust experimental design. Furthermore, this review also demonstrated that more studies are needed from the Global South and on social media platforms other than the major platforms such as Twitter and Facebook.Trial registrationPROSPERO International Prospective Register of Systematic Reviews CRD42021277524; https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42021277524.International registered report identifier (irrid)RR2-10.31219/osf.io/tyevj.

Dataset Information

Development of an interactive social media tool for parents with concerns about vaccines.

Objective

Method

Results

Conclusion

Publications

Development of an interactive social media tool for parents with concerns about vaccines.

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