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Development and validation of a Japanese version of the Patient Centred Assessment Method and its user guide: a cross-sectional study.

ABSTRACT: Objectives: The primary objective of this study was to develop the Japanese version of the Patient Centred Assessment Method (PCAM) and its user guide. The secondary objective was to examine the validity and reliability in the primary care setting.

Design: Cross-sectional study.

Setting: Three family physician teaching clinics located in urban residential areas in Tokyo, Japan.

Participants: Patients who were aged 20 years or older, and who had an appointment with physicians at the three participating clinics.

Main outcome measures: Patient complexity measured by PCAM and complexity/burden level measured by a Visual Analogue Scale (VAS).

Results: Although confirmatory factor analysis using a model described in a previous study revealed that the indices did not meet the criteria for good fit, exploratory factor analysis revealed a new three-factor structure of 'Personal well-being,' 'Social interaction' and 'Needs for care/service.' Cronbach's alpha of PCAM was 0.86. Spearman's rank correlation coefficients between PCAM scores and VAS scores were 0.51 for complexity (p<0.001) and 0.41 for burden (p<0.001). There were 42 patients (14.3% of total patients) with PCAM scores greater than its mean of 16.5 but with complexity VAS scores less than its mean of 20.8.

Conclusions: The Japanese version of PCAM and its user guide were developed through Japanese translation and cultural adaptation by cognitive debriefing. PCAM is a valid and reliable tool to assess patient complexity in the primary care settings in Japan. Additionally, although the correlation between total PCAM scores and complexity/burden as assessed by VAS was moderate, PCAM can more precisely identify patient complexity than skilled physician's intuition.

SUBMITTER: Mutai R

PROVIDER: S-EPMC7689105 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature

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Development and validation of a Japanese version of the Patient Centred Assessment Method and its user guide: a cross-sectional study.

Mutai Rieko R Sugiyama Yoshifumi Y Yoshida Shuhei S Horiguchi Ryoko R Watanabe Takamasa T Kaneko Makoto M Tominaga Tomokazu T Hayashi Daichi D Matsushima Masato M

BMJ open 20201124 11

<h4>Objectives</h4>The primary objective of this study was to develop the Japanese version of the Patient Centred Assessment Method (PCAM) and its user guide. The secondary objective was to examine the validity and reliability in the primary care setting.<h4>Design</h4>Cross-sectional study.<h4>Setting</h4>Three family physician teaching clinics located in urban residential areas in Tokyo, Japan.<h4>Participants</h4>Patients who were aged 20 years or older, and who had an appointment with physic ...[more]

PMID: 33234616

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Project description:BackgroundGuideline producers are increasingly producing versions of guidelines for the public, and knowledge of what the public want from them is also increasing. The aim of this study was to user test a patient version of a SIGN clinical guideline that was designed based on preliminary work for the DECIDE project. SIGN is the leading national guideline producer in Scotland.MethodsPeople with a diagnosis of glaucoma and non-professional carers were recruited from across Scotland. User testing was conducted using a think-aloud protocol method. Each session was conducted by one interviewer and one observer. All sessions were recorded and transcribed. The data was analysed, problems with the guideline were identified and resolved and key findings were themed using a user experience model.ResultsThirteen user testing sessions with people with glaucoma and one with a carer were conducted. Key facilitators of desirability and usability identified include clear branding as a patient version and a clearly described purpose, audience and contents page. Other facilitators include a "friendly" tone which is achieved by the use of colour, quotes, icons, simple language and charts, and brief chunked text. The value and usefulness of the patient guideline was influenced by its ability to: inform the public, link information to actions, and empower people in their interaction with healthcare professionals. Participants were disappointed by the lack of information on treatment in the patient version, which was outside its scope. Information on the evidence based guideline production process and the involvement of appropriately skilled professionals was key to the credibility of the guideline. Lack of awareness of guidelines and guideline producing bodies, is a potentially serious threat to findability/accessibility.ConclusionsIt is important for guideline producers to maximise the user experience of the public when they access patient versions of guidelines, particularly given the current low level of access and awareness. One size does not fit all and guideline producers need to strike a balance between keeping the patient version simple and providing sufficient information to facilitate shared decision making and empower the public. Guideline producers may find the results of this study useful in designing their own patient versions.

Dataset Information

Development and validation of a Japanese version of the Patient Centred Assessment Method and its user guide: a cross-sectional study.

Publications

Development and validation of a Japanese version of the Patient Centred Assessment Method and its user guide: a cross-sectional study.

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