Dataset Information

Certification information on trustworthy digital repository websites: A content analysis.

ABSTRACT: In 1996, an international group of representatives from national archives and libraries, universities, industry, publishing offices, and other government and private sector organizations first articulated the need for certified Trustworthy Digital Repositories (TDRs). Henceforth, multiple standards for TDRs have developed worldwide and their reviewers provide third party audit of digital repositories. Even though hundreds of repositories are currently certified, we do not know if audit and certification of TDRs actually matters. For example, we do not know if digital repositories are actually better at preserving digital information after certification than they were before. Additionally, we do not know if TDRs preserve digital information better than their counterparts, although TDR standards definitely promulgate this assumption. One way of assessing whether audit and certification of TDRs matters is to study its impact on TDRs' stakeholders (e.g., funders, data producers, data consumers). As an initial critical step forward, this study examines what certification-related information repositories actually include on their websites since repository websites provide a means of disseminating information. Using findings from a content analysis of 91 TDR-certified repository websites, this research examines: 1) written statements about TDR status, 2) the presence of TDR seals and their location, 3) whether the seals hyperlink to additional certification information, 4) the extent to which the certification process is explained, and 5) whether audit reports are shared. Nearly three-fourths of the repository websites provide TDR status statements and put seals in one or more places; nearly 60% post audit reports and link seals to additional certification information; and over one-third explain the certification process. Directions for future research and practical application of the results are discussed.

SUBMITTER: Donaldson DR

PROVIDER: S-EPMC7725354 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature

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Certification information on trustworthy digital repository websites: A content analysis.

Donaldson Devan Ray DR

PloS one 20201209 12

In 1996, an international group of representatives from national archives and libraries, universities, industry, publishing offices, and other government and private sector organizations first articulated the need for certified Trustworthy Digital Repositories (TDRs). Henceforth, multiple standards for TDRs have developed worldwide and their reviewers provide third party audit of digital repositories. Even though hundreds of repositories are currently certified, we do not know if audit and certi ...[more]

PMID: 33296371

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Project description:BackgroundOwing to the fact that firefighters have unique health risks, access to firefighter-specific internet-based health information is a potential mechanism for achieving better health and work outcomes.ObjectiveThe objective of our study was to identify the amount and nature of health information resources available on Canadian firefighter-specific websites and the extent to which resources are consistent across websites as a surrogate indicator of diffusion of information.MethodsA search of health resources on firefighter websites (union and employer) for all Canadian provinces, major cities and a subset of smaller cities, and the International Association of Fire Fighters (IAFF) website was conducted on Google (July 2017). Content was identified and classified based on the type of resource, health focus, and location. The quantity and nature of the resources were summarized using descriptive statistics.ResultsAmong all (N=313) websites reviewed, 41 websites had health information with a cumulative total of 128 resources that addressed firefighter mental (59/128, 46.1%), physical (43/128, 33.6%), and work health (26/128, 20.3%). The highest density of information was found on international and national websites (13 resources per website) and the least on local websites (1 resource per 7 websites). Three provinces (Ontario, Québec, and British Columbia) hosted 81% (65/80) of the provincial, territorial and local resources. General mental health (20/59, 34%), posttraumatic stress disorder (14/59, 24%), and suicide (14/59, 24%) were the most prevalent topics within the mental health resources, whereas half (21/43, 49%) of all physical health resources were on cancer. No resources from Northern Canada were found. Musculoskeletal health was not mentioned in any of the resources identified. There was minimal cross-linking of resources across sites (only 4 resources were duplicated across sites), and there was no clear indication of how the content was vetted or evaluated for quality.ConclusionsThere was wide variation in the amount and type of information available on different firefighter websites with limited diffusion of information across jurisdictions. Quality evaluation and coordination of resources should be considered to enhance firefighters' access to quality health information to meet their specific needs. Mental health and cancer information aligned with high rates of these health problems in firefighters, whereas the lack of information on musculoskeletal health was discordant with their high rate of work injury claims for these problems.

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Project description:BackgroundTrustworthy educational information for patients is critical for increasing their knowledge base and preparing them for shared decision making with clinicians. As the internet has become an important source of health information for many patients, the purpose of this study was to assess the quality and content of websites with educational content about immune checkpoint inhibitors.MethodsWe performed an environmental scan of the currently available websites providing educational information for patients about immune checkpoint inhibitors. We used three search engines: Google, Bing, and Yahoo! (9/20/2021). Two independent investigators selected relevant uniform resource locators (URLs), appraised the quality of the websites, and collected their characteristics. We evaluated the accuracy, completeness, technical elements, design and aesthetics, readability, usability, and accessibility of the websites. The user experience was also evaluated.ResultsWe identified 37 websites for analysis. In 10 websites (27%), it was not possible to know the source of the information provided. Thirty-three (89%) provided a definition with a simple explanation of cancer and treatment and 30 (81%) on complications of immune checkpoint inhibitors; only seven (19%) provided information about the balance between risks and benefits. Thirty-five (95%) provided a statement of purpose. Regarding the design, all 37 (100%) had appropriate visual aspects, typography, and grammar. Thirty-six (97%) were well organized. For most of the websites (n = 35, 95%) the content was easy to find. Only two websites had a readability score of 6, while the others had higher scores. Regarding the user experience, the overall quality of websites was rated as excellent in 16 (43%), good in 14 (38%), and fair in 7 (19%).ConclusionsOur findings reveal that websites with information about immune checkpoint inhibitors mostly have general information about cancer, the treatments, and adverse events. Few websites provide information about the balance between harms and benefits of treatment, costs, the source of the information, or the hierarchy of evidence. These findings identify the gap in the quality and content of websites for patients treated with immune checkpoint inhibitors and can help website creators and developers.

Dataset Information

Certification information on trustworthy digital repository websites: A content analysis.

Publications

Certification information on trustworthy digital repository websites: A content analysis.

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