A systematic literature review of Native American and Pacific Islanders' perspectives on health data privacy in the United States.

ABSTRACT:

Background

Privacy-related concerns can prevent equitable participation in health research by US Indigenous communities. However, studies focused on these communities' views regarding health data privacy, including systematic reviews, are lacking.

Methods

We conducted a systematic literature review analyzing empirical, US-based studies involving American Indian/Alaska Native (AI/AN) and Native Hawaiian or other Pacific Islander (NHPI) perspectives on health data privacy, which we define as the practice of maintaining the security and confidentiality of an individual's personal health records and/or biological samples (including data derived from biological specimens, such as personal genetic information), as well as the secure and approved use of those data.

Results

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SUBMITTER: Taitingfong R 

PROVIDER: S-EPMC7727344 | biostudies-literature | 2020 Dec

REPOSITORIES: biostudies-literature