Ontology highlight
ABSTRACT:
SUBMITTER: King A
PROVIDER: S-EPMC7789698 | biostudies-literature | 2021 Jan
REPOSITORIES: biostudies-literature
King Alex A Hanley Humphrey H Popenhagen Mark M Perez Florencia F Thompson Kerry K Purvis Diana D Garcia Nora N Steinlein Ida I Werkentoft Mia M Lightfoot Matthew M Lahat Michelle M Begum Kalsoom K Tanabe Julio J
Orphanet journal of rare diseases 20210106 1
This article presents evidence-based Clinical Practice Guidelines (CPG) for the provision of healthcare services to address sexuality for people living with epidermolysis bullosa (EB). Currently, a lack of EB-specific research limits these services to sexual health assessment and intervention strategies designed for the general population. Due to the unique challenges of EB, a rare skin-fragility condition causing blistering responses to minor skin trauma and other systemic and secondary complic ...[more]