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Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary.


ABSTRACT:

Purpose

The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context.

Methods

The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N?=?1000), informal caregivers were identified (N?=?149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers' and care recipients' EQ-5D-5L health status, and caregiving situation characteristics.

Results

Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were significantly correlated with caregiving time (r?=?-?0.257; -?0.212), caregivers' EQ-5D-5L scores (r?=?0.453; 0.326) and the CarerQol-7D also with care recipients' EQ-5D-5L scores (r?=?0.247). CarerQol-7D scores differed significantly with relevant caregiving characteristics (e.g. nature and severity of care recipients' health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience.

Conclusion

Our findings confirmed the validity of the Hungarian language version of the CarerQol and support the cross-cultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients' health status was only weakly associated with informal caregivers' care-related quality of life and happiness. Caregivers' own health and caregiving circumstances were more strongly associated with these scores.

SUBMITTER: Baji P 

PROVIDER: S-EPMC7886830 | biostudies-literature | 2021 Feb

REPOSITORIES: biostudies-literature

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Publications

Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary.

Baji Petra P   Brouwer Werner B F WBF   van Exel Job J   Golicki Dominik D   Prevolnik Rupel Valentina V   Zrubka Zsombor Z   Gulácsi László L   Brodszky Valentin V   Rencz Fanni F   Péntek Márta M  

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 20201010 2


<h4>Purpose</h4>The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context.<h4>Methods</h4>The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative f  ...[more]

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