Dataset Information

Emotional Safety in the Context of Dementia: A Multiperspective Qualitative Study.

ABSTRACT:

Background

Current research acknowledges the relevance of the emotional safety of people living with dementia. However, available evidence regarding this topic is limited. A comprehensive view of this topic that equally considers the perspectives of people living in an early stage of dementia, relatives, and public stakeholders is lacking.

Objective

This study aimed to obtain a multiperspective view of emotional safety in the context of dementia in the living environment.

Methods

A descriptive qualitative study was conducted based on data collected through semi-structured guided interviews (n?=?14), focus groups (n?=?3), guided feedback, and participatory approaches. People living in an early stage of dementia (N?=?6), relatives of people living with dementia (N?=?11), and public stakeholders (N?=?15) were included.

Results

Considering "social togetherness", "personal condition", "health", "physical environment", and "society" in the light of "living and learning in relations" are preconditions for understanding emotional safety in the context of dementia. "Living and learning in relations" refers to the interaction of people in the context of dementia and relations to the topic of dementia. The focus lies on the (collective) learning. The individuality of each person and his or her situation is central, related to dementia-related, psychosocial, biographical, physical, and economic factors.

Conclusion

Our study highlights the relevance of research on emotional safety in the context of dementia. Approaches to improving the emotional safety of people living in an early stage of dementia should consider the complex situations of each target group in relation to each other at the micro, meso, and macro levels.

SUBMITTER: Kuske S

PROVIDER: S-EPMC7902974 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Emotional Safety in the Context of Dementia: A Multiperspective Qualitative Study.

Kuske Silke S Borgmann Sandra Olivia SO Wolf Florian F Bleck Christian C

Journal of Alzheimer's disease : JAD 20210101 1

<h4>Background</h4>Current research acknowledges the relevance of the emotional safety of people living with dementia. However, available evidence regarding this topic is limited. A comprehensive view of this topic that equally considers the perspectives of people living in an early stage of dementia, relatives, and public stakeholders is lacking.<h4>Objective</h4>This study aimed to obtain a multiperspective view of emotional safety in the context of dementia in the living environment.<h4>Metho ...[more]

PMID: 33285639

Similar Datasets

Project description:Objective: Between June 2012 and February 2013, two decisions by the German Federal Constitutional Court restricted the so-far common practice to use involuntary medication in inpatients who were involuntarily hospitalized. Up to then, involuntary medication was justified by a judge's decision on involuntary hospitalization. It could be applied according to clinical judgment even against the declared will of a patient. Since then, all domestic laws related to involuntary treatment had to be revised. For several months, involuntary medication was allowed only in an emergency. We were interested in the impact of the changed legal framework on the experiences of inpatients, their relatives, and clinical professionals during that time. Methods: Thirty-two interviews were analyzed qualitatively using a grounded theory methodology framework. Results: As a consequence of the restrictions to involuntary medication, special efforts by nursing and medical staff were required concerning de-escalation, ward management, and the promotion of treatment commitment in inpatients who refused medication. Family caregivers were also under strong pressure. They wanted to help and to protect their relatives, but some also welcomed the use of coercion if the patient refused treatment. Most of the interviewed patients had not even noticed that their rights to refuse medication had been strengthened. They complained primarily about the involuntary hospital stay and the associated limitations of their everyday lives. While patients and family members evaluated the refusal of medication from a biographical perspective, the mental health care professionals' focus was on the patients' symptoms, and they understood the situation from a professional perspective. It was obvious that, in any of the four perspectives, the problem of feeling restricted was crucial and that all groups strived to gain back their scope of action. Conclusion: The temporary ban on involuntary medication questioned the hitherto common routines in inpatient treatment, in particular when patients refused to take medication. Each of the different groups did not feel good about the situation, for different reasons, however. As a consequence, it might be indispensable to increase awareness of the different perspectives and to focus the efforts on the establishment of nonviolent treatment structures and practices.

Dataset Information

Emotional Safety in the Context of Dementia: A Multiperspective Qualitative Study.

Background

Objective

Methods

Results

Conclusion

Publications

Emotional Safety in the Context of Dementia: A Multiperspective Qualitative Study.

Similar Datasets

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