COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions.

ABSTRACT:

Background

During the initial COVID-19 pandemic, young United Kingdom (UK) kidney patients underwent lockdown and those with increased vulnerabilities socially isolated or 'shielded' at home. The experiences, information needs, decision-making and support needs of children and young adult (CYA) patients or their parents during this period is not well known.

Methods

A UK-wide online survey co-produced with patients was conducted in May 2020 amongst CYA aged 12-30, or parents of children aged < 18 years with any long-term kidney condition. Participants answered qualitative open text alongside quantitative closed questions. Thematic content analysis using a three-stage coding process was conducted.

Results

One-hundred and eighteen CYA (median age 21) and 197 parents of c

SUBMITTER: Tse Y 

PROVIDER: S-EPMC7979448 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature