Feasibility, safety and acceptability of select outcome measures in a physiotherapy study protocol for boys with haemophilia.

ABSTRACT:

Background

There is a lack of functional performance measures for children and young people with haemophilia (CYPwH) with associated control data from typically developing boys (TDB). The literature advocates development of a core set of outcome measures for different chronic conditions. As medical treatment improves, CYPwH are experiencing better outcomes; therefore, more challenging measures are required to monitor physical performance. Such testing is not performed routinely, due to practical and safety concerns.

Aim

Evaluate the feasibility, safety and acceptability of select outcome measures as part of a study protocol testing CYPwH; including myometry, 10 metre incremental shuttle walk test (10-m ISWT), iSTEP (an incremental step test, with data from TDB), and 1 week o

SUBMITTER: Thorpe N 

PROVIDER: S-EPMC8099992 | biostudies-literature | 2021 May

REPOSITORIES: biostudies-literature