Developing an applied model for making decisions towards the end of life about care for someone with dementia.

ABSTRACT:

Background

Many people with dementia reach the end-of-life without an advance care plan. Many are not ready to have conversations about end-of-life, and decision-making is left to their families and professionals when they no longer have capacity. Carers may benefit from further support with decision-making. To develop this support, it is important to understand the decision-making process.

Aim

Explore with family carers and people living with dementia the decision-making process and factors that influence decision-making in dementia end of life care, to produce a model of decision-making in the context of dementia end-of-life care.

Methods

Semi-structured interviews with 21 family carers and 11 people with dementia in England (2018-2019) from memory clinics, general

SUBMITTER: Davies N 

PROVIDER: S-EPMC8158904 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature