Epidemiologic Research of Rare Cancers: Trends, Resources, and Challenges.

ABSTRACT:

Background

The goals of this project were to assess the status of NCI's rare cancer-focused population science research managed by the Division of Cancer Control and Population Sciences (DCCPS), to develop a framework for evaluation of rare cancer research activities, and to review available resources to study rare cancers.

Methods

Cancer types with an overall age-adjusted incidence rate of less than 20 cases per 100,000 individuals were identified using NCI Surveillance, Epidemiology and End Results (SEER) Program data. SEER data were utilized to develop a framework based on statistical commonalities. A portfolio analysis of DCCPS-supported active grants and a review of three genomic databases were conducted.

Results

For the 45 rare cancer types included in the analy

SUBMITTER: Gallicchio L 

PROVIDER: S-EPMC8254778 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature