Psychological Impact of Parkinson Disease Delusions on Spouse Caregivers: A Qualitative Study.

ABSTRACT: There is growing research on carers of people with Parkinson's disease (PD) experiences. However, the impact on carers by PD delusions is not specifically examined. We conducted a qualitative study using semi-structured interviews of spouse carers of PD patients with delusions. Thematic analysis was employed using MAXQDA 2018. Twelve spouse participants (SPs) were interviewed. Four themes emerged: Managing incredulity: trying to make sense of delusion content; Hypervigilance: constant alertness to bizarre and threatening discourse and behavior; Defensive strategizing: anticipating delusions and potential consequences; Concealing and exposing: ambivalence about disclosing the effect of delusions yet wanting support. SPs reported effects on their emotional well-being and marital relationship

SUBMITTER: Deutsch CJ 

PROVIDER: S-EPMC8301855 | biostudies-literature | 2021 Jun

REPOSITORIES: biostudies-literature