Development and validation of a parent-proxy health-related quality of life survey for Australian First Nations children.

ABSTRACT:

Objective

Within Australia, Aboriginal and Torres Strait Islander (First Nations) populations perceive health and well-being differently to non-Indigenous Australians. Existing health-related quality of life (HR-QoL) measurement tools do not account for these differences. The objective of this study was to develop and validate a culturally specific parent-proxy HR-QoL measurement tool for First Nations children.

Design

Scale development was informed by parents/carers of children with a chronic illness and an expert panel. The preliminary 39-item survey was reviewed (n=12) and tested (n=163) with parents/carers of First Nations children aged 0-12 years at baseline with comparative scales: the Kessler Psychological Distress Scale, generic HR-QoL (Paediatric QoL Inventory 4.0,

SUBMITTER: Butten K 

PROVIDER: S-EPMC8370500 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature