Emotional distress and well-being among people with motor neurone disease (MND) and their family caregivers: a qualitative interview study.

ABSTRACT:

Objective

We aimed to get an in-depth understanding of the emotions experienced by people with motor neurone disease (MND) and their caregivers, and to explore what impacts emotional distress and well-being.

Design

Qualitative study using semi-structured interviews with people with MND and caregivers.

Setting

Participants were recruited from across the UK and took part in interviews conducted either face to face, by telephone or email to accommodate for varying levels of disability.

Participants

25 people with MND and 10 caregivers took part. Participants were purposively sampled based on their MND diagnosis, symptoms and time since diagnosis.

Data analysis

Data were analysed using inductive reflexive thematic analysis.

Results

Eight broad themes

SUBMITTER: Pinto C 

PROVIDER: S-EPMC8372816 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature