Caregiver burden and associated factors among primary caregivers of patients with ALS in home care: a cross-sectional survey study.

ABSTRACT:

Objectives

This study aims to understand the caregiver burden experienced by the primary caregivers of patients with amyotrophic lateral sclerosis (ALS), and to explore the factors influencing caregiver burden.

Design

A cross-sectional survey design was used.

Setting

This study was conducted with ALS inpatients and follow-up outpatients at the neurology department of a tertiary general hospital in Taiyuan, Shanxi, China and their caregivers.

Participants

Patients with ALS and their caregivers (N=120 pairs) participated in a face-to-face interview.

Primary and secondary outcome measures

Primary outcome measures included the Zarit Burden Interview scores and personal/role burden scores. There were no secondary outcomes.

Results

Multiple linear and l

SUBMITTER: Tang S 

PROVIDER: S-EPMC8480006 | biostudies-literature | 2021 Sep

REPOSITORIES: biostudies-literature