What gets recorded, counts: dementia recording in primary care compared with a specialist database.

ABSTRACT:

Background

databases of electronic health records are powerful tools for dementia research, but data can be influenced by incomplete recording. We examined whether people with dementia recorded in a specialist database (from a mental health and dementia care service) differ from those recorded in primary care.

Methods

a retrospective cohort study of the population covered by Lambeth DataNet (primary care electronic records) between 2007 and 2019. Documentation of dementia diagnosis in primary care coded data and linked records in a specialist database (Clinical Records Interactive Search) were compared.

Results

3,859 people had dementia documented in primary care codes and 4,266 in the specialist database, with 2,886/5,239 (55%) documented in both sources. Overall, 55

SUBMITTER: Davis KAS 

PROVIDER: S-EPMC8581382 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature