FHIRedApp: a LEAP in health information technology for promoting patient access to their medical information.
Ontology highlight
ABSTRACT: Objective
Our aim is to develop a patient engagement technology that makes it easy for patients to access their own medical information and share it with others.Materials and methods
This paper describes our design through an adapted Community Engagement Studio methodology to identify the needs and preferences of a diverse group of Latinx, African-American, and Asian-American individuals in the community. We use Human-Centered Design to interpret these needs and preferences to build a digital app platform, using national data standards, clinical data aggregators, and privacy-preserving solutions while maintaining the security and confidentiality of patients.Results
We designed and developed FHIRedApp, an app platform, that allows patients to access their data and to share that access as HL7® FHIR® application programming interfaces with third-party app developers. We accomplished 2 major tasks: first, to demonstrate the use of interoperability and authentication standards, such as HL7® FHIR and OAuth2, to help develop patient engagement technologies, and second, to co-develop and co-design FHIRedApp with active involvement of African-American, Latinx, and Asian-American community members. Usability results show high satisfaction rates for FHIRedApp.Conclusion
The development of FHIRedApp demonstrates how technology innovations using national interoperability standards can be informed through a methodology of community engagement and human-centered design that involves local racial and ethnic groups.
SUBMITTER: Khurshid A
PROVIDER: S-EPMC8826978 | biostudies-literature | 2021 Oct
REPOSITORIES: biostudies-literature
Publications
FHIRedApp: a LEAP in health information technology for promoting patient access to their medical information.
Khurshid Anjum A Oliveira Eliel E Nordquist Eric E Lakshminarayanan Vidya V Abrol Vishal V
JAMIA open 20211001 4
<h4>Objective</h4>Our aim is to develop a patient engagement technology that makes it easy for patients to access their own medical information and share it with others.<h4>Materials and methods</h4>This paper describes our design through an adapted Community Engagement Studio methodology to identify the needs and preferences of a diverse group of Latinx, African-American, and Asian-American individuals in the community. We use Human-Centered Design to interpret these needs and preferences to bu ...[more]
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