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A letter is not enough: Women's preferences for and experiences of receiving breast density information.


ABSTRACT:

Objective

Despite evidence of disparate uptake of breast density (BD) information, little is known about diverse women's preferences for and experiences learning about BD.

Methods

Telephone survey among 2306 racially/ethnically and literacy diverse women; qualitative interviews with 61 survey respondents. Responses by participant race/ethnicity and literacy were examined using bivariate, then multivariable analyses. Interviews were content-analyzed for themes.

Results

Most women (80%) preferred learning of personal BD from providers, with higher rates among Non-Hispanic Black (85%) than Non-Hispanic White women (80%); and among Non-Hispanic White than Asian women (72%, all ps<0.05). Women with low literacy less often preferred receiving BD information from providers (76% v. 81%), more often preferring written notification (21% vs. 10%); women with high literacy more often preferred learning through an online portal (9% vs 3%). Most women (93%) received BD information from providers (no between group differences). Qualitative findings detailed women's desires for obtaining BD information from providers, written information, and visual depictions of BD.

Conclusions

When educating women about BD, one size does not fit all.

Practice implications

Additional educational methods are needed beyond written BD notifications to sufficiently address the varying informational needs and preferences of all USA women.

SUBMITTER: Kressin NR 

PROVIDER: S-EPMC9250336 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature

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Publications

A letter is not enough: Women's preferences for and experiences of receiving breast density information.

Kressin Nancy R NR   Wormwood Jolie B JB   Battaglia Tracy A TA   Slanetz Priscilla J PJ   Gunn Christine M CM  

Patient education and counseling 20220319 7


<h4>Objective</h4>Despite evidence of disparate uptake of breast density (BD) information, little is known about diverse women's preferences for and experiences learning about BD.<h4>Methods</h4>Telephone survey among 2306 racially/ethnically and literacy diverse women; qualitative interviews with 61 survey respondents. Responses by participant race/ethnicity and literacy were examined using bivariate, then multivariable analyses. Interviews were content-analyzed for themes.<h4>Results</h4>Most  ...[more]

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