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Role and response of primary healthcare services in community end-of-life care during COVID-19: Qualitative study and recommendations for primary palliative care delivery.


ABSTRACT:

Background

The need for end-of-life care in the community increased significantly during the COVID-19 pandemic. Primary care services, including general practitioners and community nurses, had a critical role in providing such care, rapidly changing their working practices to meet demand. Little is known about primary care responses to a major change in place of care towards the end of life, or the implications for future end-of-life care services.

Aim

To gather general practitioner and community nurse perspectives on factors that facilitated community end-of-life care during the COVID-19 pandemic, and to use this to develop recommendations to improve future delivery of end-of-life care.

Design

Qualitative interview study with thematic analysis, followed by refinement of themes and recommendations in consultation with an expert advisory group.

Participants

General practitioners (n = 8) and community nurses (n = 17) working in primary care in the UK.

Results

General practitioner and community nurse perspectives on factors critical to sustaining community end-of-life care were identified under three themes: (1) partnership working is key, (2) care planning for end-of-life needs improvement, and (3) importance of the physical presence of primary care professionals. Drawing on participants' experiences and behaviour change theory, recommendations are proposed to improve end-of-life care in primary care.

Conclusions

To sustain and embed positive change, an increased policy focus on primary care in end-of-life care is required. Targeted interventions developed during COVID-19, including online team meetings and education, new prescribing systems and unified guidance, could increase capacity and capability of the primary care workforce to deliver community end-of-life care.

SUBMITTER: Turner N 

PROVIDER: S-EPMC9720421 | biostudies-literature | 2023 Feb

REPOSITORIES: biostudies-literature

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Publications

Role and response of primary healthcare services in community end-of-life care during COVID-19: Qualitative study and recommendations for primary palliative care delivery.

Turner Nicola N   Wahid Aysha A   Oliver Phillip P   Gardiner Clare C   Chapman Helen H   Khan Ppi Co-Author Dena D   Boyd Kirsty K   Dale Jeremy J   Barclay Stephen S   Mayland Catriona R CR   Mitchell Sarah J SJ  

Palliative medicine 20221203 2


<h4>Background</h4>The need for end-of-life care in the community increased significantly during the COVID-19 pandemic. Primary care services, including general practitioners and community nurses, had a critical role in providing such care, rapidly changing their working practices to meet demand. Little is known about primary care responses to a major change in place of care towards the end of life, or the implications for future end-of-life care services.<h4>Aim</h4>To gather general practition  ...[more]

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