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A cohort study on psychosocial adjustment and psychopathology in adolescents and young adults with congenital heart disease.


ABSTRACT: Our purpose was to study psychosocial adjustment and psychiatric morbidity of adolescents and young adults with congenital heart disease (CHD).All assessment measures were obtained on a single occasion. Clinical data was obtained through the patient's clinical records.A teaching and tertiary care facility in Porto, Portugal.We evaluated 110 CHD patients (62 male) aged from 12 to 26 years (mean=18.00±3.617), 58 cyanotic. All assessment measures were obtained on a single occasion in a tertiary hospital. Demographic information and clinical history were collected.Questionnaires regarded topics such as social support, family educational style, self-image and physical limitations, a standardised psychiatric interview Schedule for Affective Disorders and Schizophrenia-Lifetime version (SADS-L), and a self-report questionnaire on psychosocial adjustment, youth self-report or adult self-report. One of the relatives completed an observational version of the same questionnaire (child behaviour checklist (CBCL) or ABCL (adult behaviour checklist)).We found a 21.8% lifetime prevalence of psychopathology, 31.3%, in females, 14.5% in males, showing a somewhat increased proneness in CHD patients. Females also showed worse psychosocial adjustment, with more somatic complaints (u=260 000; p=0.011), anxiety/depression (u=984 000; p=0.002), aggressive behaviour (u=920 500; p=0.001), attention problems (u=1123 500; p=0.027), thought problems (u=1069 500; p=0.010), internalisation (u=869 000; p=0.0) and externalisation (u=1163 000; p=0.05). Patients with severe CHD (u=939 000; p=0.03) and surgical repair (u=719 000; p=0.037) showed worse psychosocial adjustment. Those with poor social support showed more withdrawal (u=557 500; p=0.0) and social problems (u=748 500; p=0.023), and patients with unsatisfactory school performance revealed more anxiety/depression (u=916 000; p=0.02) and attention problems (u=861 500; p=0.007).CHD males with good social support and good academic performance have a better psychosocial adjustment.

SUBMITTER: Freitas IR 

PROVIDER: S-EPMC3563133 | biostudies-other | 2013

REPOSITORIES: biostudies-other

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A cohort study on psychosocial adjustment and psychopathology in adolescents and young adults with congenital heart disease.

Freitas Isabela Ribeiro IR   Castro Marta M   Sarmento Sofia Lourenço SL   Moura Cláudia C   Viana Victor V   Areias José Carlos JC   Areias Maria Emília Guimarães ME  

BMJ open 20130128 1


<h4>Objectives</h4>Our purpose was to study psychosocial adjustment and psychiatric morbidity of adolescents and young adults with congenital heart disease (CHD).<h4>Design</h4>All assessment measures were obtained on a single occasion. Clinical data was obtained through the patient's clinical records.<h4>Setting</h4>A teaching and tertiary care facility in Porto, Portugal.<h4>Participants</h4>We evaluated 110 CHD patients (62 male) aged from 12 to 26 years (mean=18.00±3.617), 58 cyanotic. All a  ...[more]

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