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Enhancing the Validity of a Quality of Life Measure for Autistic People.


ABSTRACT: Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure-WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people.

SUBMITTER: McConachie H 

PROVIDER: S-EPMC5889785 | biostudies-other | 2018 May

REPOSITORIES: biostudies-other

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Enhancing the Validity of a Quality of Life Measure for Autistic People.

McConachie Helen H   Mason David D   Parr Jeremy R JR   Garland Deborah D   Wilson Colin C   Rodgers Jacqui J  

Journal of autism and developmental disorders 20180501 5


Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure-WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had goo  ...[more]

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