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Huntington's Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment.


ABSTRACT: Huntington's disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch long term care facilities for ambulatory HD patients, a consensus trajectory was started to harmonise our care programme with international standards and within the country. The consensus statements, given as supplementary material, should lead to expert treatment and care for HD families throughout the Netherlands and this manuscript should contribute and revitalise a global discussion on standards of treatment and care.

SUBMITTER: Veenhuizen R 

PROVIDER: S-EPMC6004894 | biostudies-other | 2018

REPOSITORIES: biostudies-other

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Huntington's Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment.

Veenhuizen Ruth R   Nijsten Hanneke H   van Roosmalen Paul P   Lammertsen Karen K   Stor Tom T   de Jager Lia L   de Man Jesseke J   van der Doelen Rina R   Landa Karin K   Grond Vera V   Heffels Joyce J   Groenewoud Rinske R   Rovers Luce L   Bakker Christian C   Leiwakabessy Saskia S   van der Wedden Dirk D   van Blitterswijk Jacqueline J   van den Bosch Dieuwke D  

Journal of Huntington's disease 20180101 2


Huntington's disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch long term care facilities for ambulatory HD patients, a consensus trajectory was started to harmonise our care programme with international standards and within the country. The consensus statements, g  ...[more]

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