Dataset Information

Aging Parents' Disabilities and Daily Support Exchanges With Middle-Aged Children.

ABSTRACT: Background and Objectives:Aging parents often incur disabilities in activities of daily living, which may limit their ability to give support and necessitate increased support from middle-aged children. Research has predominantly assessed disabled parents' retrospective reports of receiving support, but we know little about their daily support exchanges with middle-aged children. This study examined practical support, emotional support, and advice that aging parents with and without disabilities provided and received from middle-aged children, and links between these support exchanges and parents' daily mood. Research Design and Methods:Aging parents (N = 202, Mage = 79.86) from the Family Exchanges Study II indicated their disabilities and background characteristics. They also reported daily exchanges of practical, emotional support, and advice with each middle-aged child and their daily mood for 7 days. Results:Multilevel models revealed that aging parents suffering disabilities were equally likely to provide each type of support but more likely to receive practical support. Aging parents' disabilities seemed to buffer the effects of these support exchanges, such that parents with disabilities versus parents without disabilities reported less negative mood when providing practical support or emotional support, and more positive mood when receiving practical support. Discussion and Implications:Exploring the role of aging parents' disabilities in their daily support exchanges with middle-aged children expands on the literature of late-life disabilities and parent-child ties. Despite increasing disabilities, aging parents continue to engage in support exchanges with middle-aged children in daily life and these parents appear to benefit from such involvement.

SUBMITTER: Huo M

PROVIDER: S-EPMC6137346 | biostudies-other | 2018 Sep

REPOSITORIES: biostudies-other

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Publications

Aging Parents' Disabilities and Daily Support Exchanges With Middle-Aged Children.

Huo Meng M Graham Jamie L JL Kim Kyungmin K Zarit Steven H SH Fingerman Karen L KL

The Gerontologist 20180901 5

<h4>Background and objectives</h4>Aging parents often incur disabilities in activities of daily living, which may limit their ability to give support and necessitate increased support from middle-aged children. Research has predominantly assessed disabled parents' retrospective reports of receiving support, but we know little about their daily support exchanges with middle-aged children. This study examined practical support, emotional support, and advice that aging parents with and without disa ...[more]

PMID: 29029164

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Project description:BackgroundReceiving a diagnosis that leads to severe disability in childhood can cause a traumatic experience with long-lasting emotional stress for patients and family members. In recent decades, emerging digital technologies have transformed how patients or caregivers of persons with disabilities manage their health conditions. As a result, information (eg, on treatment and resources) has become widely available to patients and their families. Parents and other caregivers can use digital platforms such as websites or social media to derive social support, usually from other patients and caregivers who share their lived experiences, challenges, and successes on these platforms. However, gaps remain in our understanding of platforms that are most frequently used or preferred among parents and caregivers of children with disabilities. In particular, it is not clear what factors primarily drive or discourage engagement with these digital tools and what the main ethical considerations are in relation to these tools.ObjectiveWe aimed to (1) identify prominent digital platforms used by parents or caregivers of children with disabilities; (2) explore the theoretical contexts and reasons for digital platform use, as well as the experiences made with using these platforms reported in the included studies; and (3) identify any privacy and ethical concerns emerging in the available literature in relation to the use of these platforms.MethodsWe conducted a scoping review of 5 academic databases of English-language articles published within the last 10 years for diseases with childhood onset disability and self-help or parent/caregiver-led digital platforms.ResultsWe identified 17 papers in which digital platforms used by parents of affected children predominantly included social media elements but also search engines, health-related apps, and medical websites. Information retrieval and social support were the main reasons for their utilization. Nearly all studies were exploratory and applied either quantitative, qualitative, or mixed methods. The main ethical concerns for digital platform users included hampered access due to language barriers, privacy issues, and perceived suboptimal advice (eg, due to missing empathy of medical professionals). Older and non-college-educated individuals and ethnic minorities appeared less likely to access information online.ConclusionsThis review showed that limited scientifically sound knowledge exists on digital platform use and needs in the context of disabling conditions in children, as the evidence consists mostly of exploratory studies. We could highlight that affected families seek information and support from digital platforms, as health care systems seem to be insufficient for satisfying knowledge and support needs through traditional channels.

Dataset Information

Aging Parents' Disabilities and Daily Support Exchanges With Middle-Aged Children.

Publications

Aging Parents' Disabilities and Daily Support Exchanges With Middle-Aged Children.

Similar Datasets

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