Unknown

Dataset Information

0

A Scoping Review of Key Health Items in Self-Report Instruments Used Among Solid Organ Transplant Recipients.


ABSTRACT: The overall aim of this scoping review of the literature is twofold: (1) to provide an overview of all instruments that have been used to assess health-related quality of life (HRQoL) after solid organ transplantation and (2) to provide a list of health items they include to support future studies on the development of a new-generation HRQoL instrument. All studies that administered any form of HRQoL instrument to post-transplant solid organ recipients were identified in a comprehensive search of PubMed (MEDLINE), Embase, and Web of Science, with a cut-off date of May 2018. The search used various combinations of the following keywords: lung, heart, liver, kidney, or pancreas transplantation; quality of life; well-being; patient-reported outcome; instrument; questionnaire; and health survey. In total, 8013 distinct publications were identified and 1218 of these were selected for review. Among the instruments applied, 53 measured generic, 51 organ-specific, 271 domain-specific, and 43 transplant-specific HRQoL. A total of 78 distinct health items grouped into 16 sub-domains were identified and depicted graphically. The majority of publications did not report a logical rationale for the choice of specific HRQoL instrument. The most commonly used types of instruments were generic health instruments, followed by domain-specific instruments. Despite the availability of transplant-specific instruments, few studies applied these types of instruments. Based on the 78 items, further research is planned to develop a patient-centered, transplant-specific HRQoL instrument that is concise, easy to apply (mobile application), and specifically related to the health issues of solid organ recipients.

SUBMITTER: Shahabeddin Parizi A 

PROVIDER: S-EPMC6397139 | biostudies-other | 2019 Apr

REPOSITORIES: biostudies-other

altmetric image

Publications

A Scoping Review of Key Health Items in Self-Report Instruments Used Among Solid Organ Transplant Recipients.

Shahabeddin Parizi Ahmad A   Krabbe Paul F M PFM   Buskens Erik E   Bakker Stephan J L SJL   Vermeulen Karin M KM  

The patient 20190401 2


The overall aim of this scoping review of the literature is twofold: (1) to provide an overview of all instruments that have been used to assess health-related quality of life (HRQoL) after solid organ transplantation and (2) to provide a list of health items they include to support future studies on the development of a new-generation HRQoL instrument. All studies that administered any form of HRQoL instrument to post-transplant solid organ recipients were identified in a comprehensive search o  ...[more]

Similar Datasets

| S-EPMC4261198 | biostudies-other
| S-EPMC5512489 | biostudies-literature
| S-EPMC5636643 | biostudies-literature
| S-EPMC7850530 | biostudies-literature
| S-EPMC9489278 | biostudies-literature
| S-EPMC4402344 | biostudies-literature
| S-EPMC5324811 | biostudies-literature
| S-EPMC7453406 | biostudies-literature
| S-EPMC4769648 | biostudies-literature
| S-EPMC3358074 | biostudies-literature