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Identifying Patients With Hereditary and Familial Colorectal Cancer by Using an Online Risk Tool


ABSTRACT: In this trial the investigators will evaluate the effectiveness of the implementation of a digital familial risk questionnaire in the detection of CRC patients with hereditary or familial CRC. This will be done using a stepped wedge design with 5 participating hospitals for a duration of 1.5 years. A comparison is made between an intervention phase (offering the online risk assessment questionnaire) and a control phase (hospital-based standard practice for the detection of CRC patients with hereditary or familial CRC, informed by the referral criteria that are being used in the intervention group). All patients with a diagnosis of CRC who have a first appointment at the CRC outpatient clinic will be included. The primary outcome is the percentage of all included patients who receive a recommendation for regular surveillance colonoscopies for himself/herself and/or relatives, provided by a clinical geneticist. Data from clinical geneticists is being used to answer this question.

DISEASE(S): Lynch Syndrome,Colorectal Cancer,Colorectal Neoplasms,Familial Colorectal Cancer,Colorectal Neoplasms, Hereditary Nonpolyposis

PROVIDER: 2205406 | ecrin-mdr-crc |

REPOSITORIES: ECRIN MDR

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