How does the diagnosis of a bowel condition affect quality of life and how do people manage their health?

ABSTRACT: Interventions: People aged 40 or older and who have had a recent diagnosis of a bowel condition at colonoscopy will be contacted about this study. This will include people with a main diagnosis of a small adenoma, a significant adenoma, bowel cancer of stage I, II, III or IV, or those with non-neoplastic findings such as diverticular disease or haemorrhoids. Within two weeks after colonoscopy people will be sent a letter inviting them to take part in a questionnaire at this time point and again 12 months later. The questionnaire contains four sections. Section A mainly includes questions about health conditions and any treatment that the person may have received in the past 12 months. Section B contains questions about health-related quality of life and wellbeing. Section C contains questions on attitudes towards managing health. Section D includes questions about the person’s background. If the questionnaire is not returned within two weeks then research staff will make telephone contact with the invitees to follow-up and confirm their willingness or otherwise to participate in the study. Another sub-group of participants will now be included in this study, to capture more information about the quality of life (QOL) from individuals who have completed treatment for colorectal adenocarcinoma (stages I, II, III, IV). A single questionnaire will be offered to individuals who are within 3 years post-surgery/neoadjuvant therapy, after a colorectal cancer (CRC) diagnosis. Primary outcome(s): The primary outcome will be the quality of life in people who have been diagnosed with a bowel condition. This will be assessed by questionnaire using existing surveys- a generic preference-based health related quality of life instrument (the EQ-5D-5L), a cancer-specific quality of life instrument (the EORTC QLQ-C30) and a widely used subjective wellbeing measure (the Satisfaction with Life Scale).[This will be assessed via questionnaire within two weeks and 12 months after colonoscopy.]

DISEASE(S): Gastrointestinal Diseases,Public Health-health Service Research,Cancer-bowel-back Passage (rectum) Or Large Bowel (colon)

PROVIDER: 2464776 | ecrin-mdr-crc |

REPOSITORIES: ECRIN MDR