Dataset Information

Real-World Evaluation of the Feasibility, Acceptability and Safety of a Remote, Self-Management Parkinson's Disease Care Pathway: A Healthcare Improvement Initiative.

ABSTRACT:

Background

There is significant unmet need for effective and efficiently delivered care for people with Parkinson's disease (PwP). We undertook a service improvement initiative to co-develop and implement a new care pathway, Home Based Care (HBC), based on supported self-management, remote monitoring and the ability to trigger a healthcare contact when needed.

Objective

To evaluate feasibility, acceptability and safety of Home Based Care.

Methods

We evaluated data from the first 100 patients on HBC for 6 months. Patient monitoring, performed at baseline and 6-monthly, comprised motor (MDS-UPDRS II and accelerometer), non-motor (NMSQ, PDSS-2, HADS) and quality of life (PDQ) measures. Care quality was audited against Parkinson's UK national audit standards. Process measures captured feasibility. Acceptability was assessed using a mixed-methods approach comprising questionnaires and semi-structured interviews.

Results

Between October 2019 and January 2021, 108 PwP were enrolled onto HBC, with data from 100 being available at 6 months. Over 90% of all questionnaires were returned, 97% were complete or had < 3 missing items. Reporting and communications occurred within agreed timeframes. Compared with baseline, after 6m on HBC, PD symptoms were stable; more PwP felt listened to (90% vs. 79%) and able to seek help (79% vs. 68%). HBC met 93% of national audit criteria. Key themes from the interviews included autonomy and empowerment.

Conclusions

We have demonstrated acceptability, feasibility and safety of our novel remotely delivered Parkinson's care pathway. Ensuring scalability will widen its reach and realize its benefits for underserved communities, enabling formal comparisons with standard care and cost-effectiveness evaluation.

SUBMITTER: Kehagia AA

PROVIDER: S-EPMC10836560 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature

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Publications

Real-World Evaluation of the Feasibility, Acceptability and Safety of a Remote, Self-Management Parkinson's Disease Care Pathway: A Healthcare Improvement Initiative.

Kehagia Angie A AA Chowienczyk Sarah S Helena van Velthoven Michelle M King Emma E North Tracie T Shenton Deb D Abraham Jane J Langley Joseph J Partridge Rebecca R Ankeny Ursula U Gorst Terry T Edwards Emma E Whipps Sue S Batup Martha M Rideout Jane J Swabey Mat M Inches Jemma J Bentley Sue S Gilbert Georgina G Carroll Camille C

Journal of Parkinson's disease 20240101 1

<h4>Background</h4>There is significant unmet need for effective and efficiently delivered care for people with Parkinson's disease (PwP). We undertook a service improvement initiative to co-develop and implement a new care pathway, Home Based Care (HBC), based on supported self-management, remote monitoring and the ability to trigger a healthcare contact when needed.<h4>Objective</h4>To evaluate feasibility, acceptability and safety of Home Based Care.<h4>Methods</h4>We evaluated data from the ...[more]

PMID: 38250784

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Dataset Information

Real-World Evaluation of the Feasibility, Acceptability and Safety of a Remote, Self-Management Parkinson's Disease Care Pathway: A Healthcare Improvement Initiative.

Background

Objective

Methods

Results

Conclusions

Publications

Real-World Evaluation of the Feasibility, Acceptability and Safety of a Remote, Self-Management Parkinson's Disease Care Pathway: A Healthcare Improvement Initiative.

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