Dataset Information

Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development.

ABSTRACT:

Objective

To develop a theoretically sound, client-derived framework to underpin development of a measure reflecting the impact of traumatic brain injury (TBI) on a person's self-identity.

Design

Grounded theory, based on transcription of audio recordings from focus group meetings with people who have experienced TBI, analysed with constant comparative methods.

Setting

8 different urban and rural communities in New Zealand.

Participants

49 people (34 men, 15 women), 6?months to 36?years after mild-to-severe TBI.

Results

The central concept emerging from the data was that of desiring to be or having lost a sense of being an integrated and valued person. The three main subthemes were: (1) having a coherent, satisfying and complete sense of oneself, (2) respect, validation and acceptance by others and (3) having a valued place in the world.

Conclusions

This study reinforces the notion that change in self-identity is an important aspect of life after TBI, and provides information on what this concept means to people with TBI. In order to scientifically evaluate relationships between self-identity and other aspects of health (eg, depression, quality of life), and to test the effect of interventions to address problems with self-identity after TBI, a quantitative tool for evaluation of this construct is required. Themes from this research provide a foundation for the development of a measure of self-identity grounded in the language and experience of people with TBI.

SUBMITTER: Levack WM

PROVIDER: S-EPMC4024597 | biostudies-literature | 2014 May

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development.

Levack William M M WM Boland Pauline P Taylor William J WJ Siegert Richard J RJ Kayes Nicola M NM Fadyl Joanna K JK McPherson Kathryn M KM McPherson Kathryn M KM

BMJ open 20140515 5

<h4>Objective</h4>To develop a theoretically sound, client-derived framework to underpin development of a measure reflecting the impact of traumatic brain injury (TBI) on a person's self-identity.<h4>Design</h4>Grounded theory, based on transcription of audio recordings from focus group meetings with people who have experienced TBI, analysed with constant comparative methods.<h4>Setting</h4>8 different urban and rural communities in New Zealand.<h4>Participants</h4>49 people (34 men, 15 women), ...[more]

PMID: 24833684

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Project description:BackgroundHealth information avoidance is common in real life, but because it is not always conducive to health promotion and maintenance, people often actively switch to health information acquisition. Understanding this process of active change can facilitate intervention in unreasonable avoidance behaviors. However, studies so far have mostly focused on why and how avoidance takes place, little is known about the process of active change from avoidance to acquisition. We thus use a grounded theory approach (GT) to explore how the active change takes place, and to generate a grounded theoretical framework capable of illustrating stages and influencing factors involved in the active change process.MethodsStraussian grounded theory (Corbin & Strauss, 2015) was used to analyze data collected through semi-structured interviews with 30 adults (14 in good health, 11 with disease, 5 in other health status) who had experienced health information behavior change from avoidance to acquisition. These interviews focused on how the change occurred and what effected the change.ResultsThe core category of Health Information Avoidance Change and 12 categories were identified and integrated to form a theoretical framework termed the Health Information Avoidance Change Model (HIACM). This model describes the process using five non-linear stage variables (initiation, preparation, action, maintenance, and abandonment) and seven moderating factor variables (cognitive change, social stimulus, beliefs and attitudes, intrapsychic literacy, social resources, information source, time and material resources).ConclusionsHIACM can be used to explain the process of active change from health information avoidance to health information acquisition. HIAC is a non-linear and holistic process, and it is necessary to dynamically analyze the impact of relevant factors and take targeted intervention measures in stages. HIAC is usually not only an individual behavior, but also a socialized behavior requiring the collaboration of individuals, families, health information providers, healthcare providers, and governments.

Dataset Information

Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development.

Objective

Design

Setting

Participants

Results

Conclusions

Publications

Establishing a person-centred framework of self-identity after traumatic brain injury: a grounded theory study to inform measure development.

Similar Datasets

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