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Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention.

ABSTRACT: OBJECTIVE:The aim was to explore the experiences of a person-centred e-health intervention, in patients diagnosed with chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF). DESIGN:Grounded theory was applied to gather and analyse data. SETTING:The study is part of a research project evaluating the effects of person-centred care (PCC) using a digital platform and structured telephone support for people with COPD or CHF recruited from nine primary care units in Sweden. PARTICIPANTS:Twelve patients from the intervention group were purposefully selected in accordance with the initial sampling criteria. INTERVENTION:The intervention was delivered through a digital platform and telephone support system for 6 months. The intervention relied on person-centred ethics operationalised through three core PCC components: patient narratives, partnership and shared documentation. RESULTS:A core category was formulated: Being welcomed through the side door when lacking the front door keys. The core category reflects how a PCC intervention delivered remotely provides access to mutual and informal meetings at times when professional contacts were desired to support patient self-management goals. According to patients' wishes, family and friends were seldom invited as care partners in the e-health context. CONCLUSIONS:A PCC intervention delivered remotely as a complement to standard care in a primary care setting for patients diagnosed with COPD or CHF is a viable approach to increase patients' access and involvement in preventive care. The e-health intervention seemed to facilitate PCC, strengthen patients' position in the health service system and support their self-management.

SUBMITTER: Barenfeld E

PROVIDER: S-EPMC7682879 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature

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Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention.

Barenfeld Emmelie E Ali Lilas L Wallström Sara S Fors Andreas A Ekman Inger I

PloS one 20201123 11

<h4>Objective</h4>The aim was to explore the experiences of a person-centred e-health intervention, in patients diagnosed with chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF).<h4>Design</h4>Grounded theory was applied to gather and analyse data.<h4>Setting</h4>The study is part of a research project evaluating the effects of person-centred care (PCC) using a digital platform and structured telephone support for people with COPD or CHF recruited from nine primary care ...[more]

PMID: 33226986

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Project description:Leadership in public health is necessary, relevant, and important as it enables the engagement, management, and transformation of complex public health challenges at a national level, as well as collaborating with internal stakeholders to address global public health threats. The research literature recommends exploring the journey of public health leaders and the factors influencing leadership development, especially in developing countries. Thus, we aimed to develop a grounded theory on individual leadership development in the Nepalese context. For this, we adopted constructivist grounded theory, and conducted 46 intensive interviews with 22 public health officials working under the Ministry of Health, Nepal. Data were analysed by adopting the principles of Charmaz's constructivist grounded theory. The theory developed from this study illustrates four phases of leadership development within an individual-initiation, identification, development, and expansion. The 'initial phase' is about an individual's wishes to be a leader without a formal role or acknowledgement, where family environment, social environment and individual characteristics play a role in influencing the actualisation of leadership behaviours. The 'identification phase' involves being identified as a public health official after having formal position in health-related organisations. The 'development' phase is about developing core leadership capabilities mostly through exposure and experiences. The 'expansion' phase describes expanding leadership capabilities and recognition mostly by continuous self-directed learning. The grounded theory provides insights into the meaning and actions of participants' professional experiences and highlighted the role of individual characteristics, family and socio-cultural environment, and workplace settings in the development of leadership capabilities. It has implications for academia to fulfill the absence of leadership theory in public health and is significant to fulfill the need of leadership models grounded in the local context of Asian countries.

Dataset Information

Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention.

Publications

Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention.

Similar Datasets

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