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Confidentiality, privacy, and respect: experiences of female sex workers participating in HIV research in Andhra Pradesh, India.


ABSTRACT: Female sex workers (FSWs) from Andhra Pradesh, India, who had participated in HIV research were interviewed to examine participant perspectives on research ethics. Content analysis indicated that aspects of the consent process, staff gender and demeanor, study environment, survey content, time requirements for study participation, and perceived FSW community support for research were key factors influencing whether FSWs perceived their confidentiality and privacy had been maintained, and whether they felt the study was conducted respectfully. Findings suggest that partnership with community-based organizations and investigation of participant's experiences in HIV prevention research can provide critical information to best inform research ethics protocols, a particular priority among research studies with highly stigmatized populations, such as FSWs.

SUBMITTER: Reed E 

PROVIDER: S-EPMC4111636 | biostudies-literature | 2014 Feb

REPOSITORIES: biostudies-literature

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Confidentiality, privacy, and respect: experiences of female sex workers participating in HIV research in Andhra Pradesh, India.

Reed Elizabeth E   Khoshnood Kaveh K   Blankenship Kim M KM   Fisher Celia B CB  

Journal of empirical research on human research ethics : JERHRE 20140201 1


Female sex workers (FSWs) from Andhra Pradesh, India, who had participated in HIV research were interviewed to examine participant perspectives on research ethics. Content analysis indicated that aspects of the consent process, staff gender and demeanor, study environment, survey content, time requirements for study participation, and perceived FSW community support for research were key factors influencing whether FSWs perceived their confidentiality and privacy had been maintained, and whether  ...[more]

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