Understanding quality of life and patient expectations among adolescents with neonatal brachial plexus palsy: a qualitative and quantitative pilot study.

ABSTRACT:

Purpose

To explore the quality of life (QOL) and patient expectations among adolescents with neonatal brachial plexus palsy (NBPP)and their parents using qualitative and quantitative approaches.

Methods

A total of 18 adolescents (10-17 y) with residual NBPP impairment and their parents under went separate 1-hour tape-recorded semistructured interviews. We also collected quantitative physical examination measures and patient-rated outcome scores, specifically the Pediatric Outcomes Data Collection Instrument and the Child Health Questionnaire, to quantify the severity of each adolescent’s functional deficit and increase our understanding of QOL and patient expectations.

Results

Through qualitative analysis, we identified several patient- and system-dependent factors co

SUBMITTER: Squitieri L 

PROVIDER: S-EPMC4158435 | biostudies-literature | 2013 Dec

REPOSITORIES: biostudies-literature