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Patient knowledge and information-seeking about personalized cancer therapy.


ABSTRACT: Understanding patients' knowledge and prior information-seeking regarding personalized cancer therapy (PCT) may inform future patient information systems, consent for molecular testing and PCT protocols. We evaluated breast cancer patients' knowledge and information-seeking behaviors regarding PCT.Newly registered female breast cancer patients (n=100) at a comprehensive cancer center completed a self-administered questionnaire prior to their first clinic visit.Knowledge regarding cancer genetics and PCT was moderate (mean 8.7±3.8 questions correct out of 16). A minority of patients (27%) indicated that they had sought information regarding PCT. Higher education (p=0.009) and income levels (p=0.04) were associated with higher knowledge scores and with seeking PCT information (p=0.04). Knowledge was not associated with willingness to participate in PCT research.Educational background and financial status impact patient knowledge as well as information-seeking behavior. For most patients, clinicians are likely to be patients' initial source of information about PCT. Understanding patients' knowledge deficits at presentation may help inform patient education efforts.

SUBMITTER: Rogith D 

PROVIDER: S-EPMC4789765 | biostudies-literature | 2016 Apr

REPOSITORIES: biostudies-literature

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Patient knowledge and information-seeking about personalized cancer therapy.

Rogith Deevakar D   Yusuf Rafeek A RA   Hovick Shelley R SR   Fellman Bryan M BM   Peterson Susan K SK   Burton-Chase Allison M AM   Li Yisheng Y   Bernstam Elmer V EV   Meric-Bernstam Funda F  

International journal of medical informatics 20160118


<h4>Background</h4>Understanding patients' knowledge and prior information-seeking regarding personalized cancer therapy (PCT) may inform future patient information systems, consent for molecular testing and PCT protocols. We evaluated breast cancer patients' knowledge and information-seeking behaviors regarding PCT.<h4>Methods</h4>Newly registered female breast cancer patients (n=100) at a comprehensive cancer center completed a self-administered questionnaire prior to their first clinic visit.  ...[more]

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