Unknown

Dataset Information

0

My46: a Web-based tool for self-guided management of genomic test results in research and clinical settings.


ABSTRACT: A major challenge to implementing precision medicine is the need for an efficient and cost-effective strategy for returning individual genomic test results that is easily scalable and can be incorporated into multiple models of clinical practice. My46 is a Web-based tool for managing the return of genetic results that was designed and developed to support a wide range of approaches to disclosing results, ranging from traditional face-to-face disclosure to self-guided models. My46 has five key functions: set and modify results-return preferences, return results, educate, manage the return of results, and assess the return of results. These key functions are supported by six distinct modules and a suite of features that enhance the user experience, ease site navigation, facilitate knowledge sharing, and enable results-return tracking. My46 is a potentially effective solution for returning results and supports current trends toward shared decision making between patients and providers and patient-driven health management.Genet Med 19 4, 467-475.

SUBMITTER: Tabor HK 

PROVIDER: S-EPMC5352554 | biostudies-literature | 2017 Apr

REPOSITORIES: biostudies-literature

altmetric image

Publications

My46: a Web-based tool for self-guided management of genomic test results in research and clinical settings.

Tabor Holly K HK   Jamal Seema M SM   Yu Joon-Ho JH   Crouch Julia M JM   Shankar Aditi G AG   Dent Karin M KM   Anderson Nick N   Miller Damon A DA   Futral Brett T BT   Bamshad Michael J MJ  

Genetics in medicine : official journal of the American College of Medical Genetics 20160915 4


A major challenge to implementing precision medicine is the need for an efficient and cost-effective strategy for returning individual genomic test results that is easily scalable and can be incorporated into multiple models of clinical practice. My46 is a Web-based tool for managing the return of genetic results that was designed and developed to support a wide range of approaches to disclosing results, ranging from traditional face-to-face disclosure to self-guided models. My46 has five key fu  ...[more]

Similar Datasets

| S-EPMC8760272 | biostudies-literature
| S-EPMC4010112 | biostudies-literature
| S-EPMC4251040 | biostudies-literature
| S-EPMC6231852 | biostudies-literature
| S-EPMC6907135 | biostudies-literature
| S-EPMC7446945 | biostudies-literature
| S-EPMC6739950 | biostudies-literature
| S-EPMC2744709 | biostudies-literature
| S-EPMC7728529 | biostudies-literature
| S-EPMC4705487 | biostudies-literature