Dataset Information

Course and predictors of supportive care needs among Mexican breast cancer patients: A longitudinal study.

ABSTRACT:

Objective

This study examined the course and predictors of supportive care needs among Mexican breast cancer patients for different cancer treatment trajectories.

Methods

Data from 172 (66.4% response rate) patients were considered in this observational longitudinal study. Participants were measured after diagnosis, neoadjuvant treatment, surgery, adjuvant treatment, and the first post-treatment follow-up visit. Psychological, Health System and Information, Physical and Daily Living, Patient Care and Support, Sexual, and Additional care needs were measured with the Supportive Care Needs Survey (SCNS-SF34). Linear mixed models with maximum-likelihood estimation were computed.

Results

The course of supportive care needs was similar across the different cancer treatment trajectories. Supportive care needs declined significantly from diagnosis to the first post-treatment follow-up visit. Health System and Information care needs were the highest needs over time. Depressive symptoms and time since diagnosis were the most consistent predictors of changes in course of supportive care needs of these patients.

Conclusions

Health system and information care needs of Mexican breast cancer patients need to be addressed with priority because these needs are the least met. Furthermore, patients with high depressive symptoms at the start of the disease trajectory have greater needs for supportive care throughout the disease trajectory.

SUBMITTER: Perez-Fortis A

PROVIDER: S-EPMC6175400 | biostudies-literature | 2018 Sep

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Course and predictors of supportive care needs among Mexican breast cancer patients: A longitudinal study.

Pérez-Fortis Adriana A Fleer Joke J Schroevers Maya J MJ Alanís López Patricia P Sánchez Sosa Juan José JJ Eulenburg Christine C Ranchor Adelita V AV

Psycho-oncology 20180619 9

<h4>Objective</h4>This study examined the course and predictors of supportive care needs among Mexican breast cancer patients for different cancer treatment trajectories.<h4>Methods</h4>Data from 172 (66.4% response rate) patients were considered in this observational longitudinal study. Participants were measured after diagnosis, neoadjuvant treatment, surgery, adjuvant treatment, and the first post-treatment follow-up visit. Psychological, Health System and Information, Physical and Daily Livi ...[more]

PMID: 29802674

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Project description:OBJECTIVES:Patients diagnosed with pancreatic cancer have the poorest survival prognosis of any cancer. This survey aimed to describe their experiences of care and supportive care needs to inform future service provision. DESIGN:Cross-sectional questionnaire survey of patients with pancreatic cancer in the UK. SETTING:Individuals at any stage along the care pathway were recruited via five National Health Service sites in the UK, and online, from January to June 2018. PARTICIPANTS:274 individuals completed the questionnaire (78% (215) were completed online). Approximately half of participants were diagnosed within the last year (133/274). Of 212 providing gender details, 82 were male and 130 were female. Ninety per cent (192/213) described themselves as White British. PRIMARY OUTCOME MEASURES:Experiences of communication and information; involvement in treatment decisions; supportive care needs. RESULTS:Communication with, and care received from, clinical staff were generally reported positively. However, 29% (75/260) of respondents did not receive enough information at diagnosis, and 10% (25/253) felt they were not involved in decisions about their treatment, but would have liked to be. Supportive care needs were greatest in psychological and physical/daily living domains. 49% (108/221) of respondents reported one or more moderate/high unmet needs within the last month, of which the most commonly reported were: dealing with uncertainty about the future; fears about the cancer spreading; not being able to do things they used to; concerns about those close to them; lack of energy; anxiety; feelings of sadness and feeling down/depressed. Experiences were poorer, and unmet supportive care needs greater, in patients with unresectable disease. CONCLUSIONS:Patients with pancreatic cancer have unmet information and support needs across the cancer trajectory. Psychological and physical support appears to be the biggest gap in care. Needs should be assessed and supportive care interventions implemented from the point of diagnosis, and monitored regularly to help patients live as good a quality of life as possible.

Dataset Information

Course and predictors of supportive care needs among Mexican breast cancer patients: A longitudinal study.

Objective

Methods

Results

Conclusions

Publications

Course and predictors of supportive care needs among Mexican breast cancer patients: A longitudinal study.

Similar Datasets

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