Dataset Information

Neurological Disorders in Central Spain, Second Survey: Feasibility Pilot Observational Study.

ABSTRACT: BACKGROUND:The Neurological Disorders in Central Spain, second survey (NEDICES-2) is a population-based, closed-cohort study that will include over 8000 subjects aged ?55 years. It will also include a biobank. OBJECTIVE:The objective of this study was to evaluate all major aspects of the NEDICES-2 (methods, database, screening instruments, and questionnaires, as well as interexpert rating of the neurological diagnoses) in each one of the planned areas (all of them in central Spain) and to test the possibility of obtaining biological samples from each participant. METHODS:A selection of patients and participants of the planned NEDICES-2 underwent face-to-face interviews including a comprehensive questionnaire on demographics, current medications, medical conditions, and lifestyle habits. Biological samples (blood, saliva, urine, and hair) were also obtained. Furthermore, every participant was examined by a neurologist. RESULTS:In this pilot study, 567 study participants were enrolled (196 from hospitals and 371 from primary care physician lists). Of these 567, 310 completed all study procedures (questionnaires and the neurological evaluation). The study was time-consuming for several primary care physicians. Hence, a few primary care physicians from some areas refused to participate, which led to a reconfiguration of study areas. In addition, the central biobank needed to be supplemented by the biobanks of local Spanish National Health System hospitals. CONCLUSIONS:Population-based epidemiological surveys, such as the NEDICES-2, require a pilot study to evaluate the feasibility of all aspects of a future field study (population selection, methods and instruments to be used, neurological diagnosis agreement, and data collection).

SUBMITTER: Hernandez-Gallego J

PROVIDER: S-EPMC6329894 | biostudies-literature | 2019 Jan

REPOSITORIES: biostudies-literature

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Neurological Disorders in Central Spain, Second Survey: Feasibility Pilot Observational Study.

Hernández-Gallego Jesús J Llamas-Velasco Sara S Bermejo-Pareja Felix F Vega Saturio S Tapias-Merino Ester E Rodríguez-Sánchez Emiliano E Boycheva Elina E Serrano José Ignacio JI Gil-García Juan-Francisco JF Trincado Rocio R Sánchez-Rodrigo José-María Vizcaino JV Cacho Jesús J Contador Israel I Garcia-Ptacek Sara S Sierra-Hidalgo Fernando F Cubo Esther E Carro Eva E Villarejo-Galende Alberto A García García-Patino Rosalía R Benito-León Julián J

JMIR research protocols 20190110 1

<h4>Background</h4>The Neurological Disorders in Central Spain, second survey (NEDICES-2) is a population-based, closed-cohort study that will include over 8000 subjects aged ≥55 years. It will also include a biobank.<h4>Objective</h4>The objective of this study was to evaluate all major aspects of the NEDICES-2 (methods, database, screening instruments, and questionnaires, as well as interexpert rating of the neurological diagnoses) in each one of the planned areas (all of them in central Spain ...[more]

PMID: 30632964

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Project description:BackgroundPatients' relationship with their GPs is linked to adherence, patient behaviour and satisfaction with healthcare. Several factors pertaining to this relationship have already been identified, however expectations and preferences vary depending on age and diagnosis. Chronically ill elderly patients constitute a group of patients with specific needs that are not yet understood.MethodsFor this observational study, 100 (44 female, mean age 72.72 + - 8.28 years) patients were interviewed. Multiple linear or binary logistic regression as well as analysis of variance was used to understand the link between factors pertaining to GP relationship and patient behaviour, and principal component analysis was performed to understand the underlying structure of patients' needs.ResultsPatients attribute high importance to their GP's opinion of them. On average, what the GP thinks about the patients is almost as important as what their partners think. Patients primarily want to be perceived as engaged, friendly and respected individuals, and it is important for patients to be liked by their GP. This importance is linked to active preparation; 65% of the patients prepared actively for GP consultations. Expectations regarding GP consultations can be split into two components: a medical aspect with a subfactor concerning emotional support, and a social component. Prominent factors influencing the relationship are the possibility to talk about emotions and mental well-being, trust, and GP competency. Satisfaction and trust were mainly linked to medical competency. Being able to show emotions or talk about mental well-being enhances perceived GP competence, satisfaction, and active patient preparation. However, a focus on the social component such as frequent talking about private topics reduces both perceived GP competency as well as active patient preparation.ConclusionOlder patients take GP consultations seriously, and their expectations regarding GP consultations focus on medical competence and care as well as empathetic listening and understanding. Older persons seek a deeper connection to their GPs and are willing to be active and cooperative. As the patient-GP relationship influences health outcomes, treatment of older patients should be adjusted to enable this active participation.

Dataset Information

Neurological Disorders in Central Spain, Second Survey: Feasibility Pilot Observational Study.

Publications

Neurological Disorders in Central Spain, Second Survey: Feasibility Pilot Observational Study.

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