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Factors Associated with Supportive Care Service Use Among California Alzheimer's Disease Patients and Their Caregivers.

ABSTRACT: BACKGROUND:Existing literature on factors associated with supportive care service (SCS) use is limited. A better understanding of these factors could help tailor SCS to the needs of frequent users, as well as facilitate targeted outreach to populations that underutilize available services. OBJECTIVE:To investigate the prevalence of SCS use and to identify factors associated with, and barriers to, service use. METHODS:California Alzheimer's Disease Center patients with AD (n?=?220) participated in the study from 2006-2009. Patients and their caregivers completed assessments to determine SCS use. Cognitive, functional, and behavioral status of the patients were also assessed. A two-part hurdle analysis identified 1) factors associated with any service use and 2) service use frequency among users. RESULTS:Forty percent of participants reported using at least one SCS. Patients with more impaired cognition and activities of daily living and more of the following: total number of medications, comorbid medical conditions, and years of education were more likely to use any SCS (p?

SUBMITTER: Newkirk LA

PROVIDER: S-EPMC7322017 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature

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Factors Associated with Supportive Care Service Use Among California Alzheimer's Disease Patients and Their Caregivers.

Newkirk Lori A LA Dao Virginia L VL Jordan Joshua T JT Alving Loren I LI Davies Helen D HD Hewett Linda L Beaudreau Sherry A SA Schneider Logan D LD Gould Christine E CE Chick Christina F CF Hirst Rayna B RB Rose Sophia Miryam Schüssler-Fiorenza SMS Anker Lauren A LA Tinklenberg Jared R JR O'Hara Ruth R

Journal of Alzheimer's disease : JAD 20200101 1

<h4>Background</h4>Existing literature on factors associated with supportive care service (SCS) use is limited. A better understanding of these factors could help tailor SCS to the needs of frequent users, as well as facilitate targeted outreach to populations that underutilize available services.<h4>Objective</h4>To investigate the prevalence of SCS use and to identify factors associated with, and barriers to, service use.<h4>Methods</h4>California Alzheimer's Disease Center patients with AD (n ...[more]

PMID: 31743997

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Project description:Importance:Understanding supportive care needs in patients with cancer is important for developing approaches that enhance quality of life and promote satisfaction with care. Objective:To characterize the nature and frequency of sociodemographic, medical, and psychosocial factors associated with unmet needs in patients with uveal melanoma 1 week and 3 months after diagnosis. Design, Setting, and Participants:This 3-month, prospective, longitudinal survey study was conducted at a university-based ophthalmology practice from June 1, 2007, to July 1, 2011. Data were analyzed in April 2017. Consecutive patients (n?=?429) scheduled for diagnostic evaluation for an intraocular abnormality were assessed for eligibility. Participants were ineligible (n?=?25) if they were younger than 18 years, had previous advanced cancer, or evidenced cognitive impairment. Of the patients who provided informed consent (n?=?306), those subsequently diagnosed with uveal melanoma by an ophthalmologist (n?=?107) were included in the analysis. Main Outcomes and Measures:Unmet needs (ie, desire for help in psychological, physical, health information, communication, or social domains) were assessed using the Cancer Needs Questionnaire. Multivariable regression analyses determined factors associated with unmet need severity across 3 months. Results:One hundred seven patients (58 [54%] men; mean [SD] age, 59.0 [12.8] years) completed the baseline assessment. At 1 week after diagnosis, nearly all patients (85 of 86 [99%]) expressed at least 1 unmet need, as did 68 of 79 (86%) 3 months later. The most frequently endorsed needs were in the health information and psychological domains. Patients' unmet needs declined significantly over 3 months (mean [SD] change, -10.0 [14.4]; 95% CI, -6.4 to -13.6; t?=?-5.6). Sociodemographic and medical characteristics were unrelated to unmet need severity. However, higher prediagnosis instrumental social support (b?=?-0.2; 95% CI, -0.3 to -0.1; z?=?-2.8) and lower neuroticism (b?=?0.3; 95% CI, 0.1-0.5; z?=?2.9) predicted lower unmet need severity 1 week after diagnosis. Having a smaller social network predicted lower unmet need severity 3 months after diagnosis (b?<?0.1; 95% CI, <0.1 to <0.1; z?=?2.4) as well as a decline in needs from diagnosis to 3 months later (b?<?0.1; 95% CI, <0.1 to <0.1; z?=?2.3). Conclusions and Relevance:Within 1 week after diagnosis and 3 months later, most patients with uveal melanoma cited important health information and psychological needs. These findings suggest that prior to or at diagnosis, the severity of such needs and psychosocial factors that may be associated can be identified for proactive supportive intervention.

Dataset Information

Factors Associated with Supportive Care Service Use Among California Alzheimer's Disease Patients and Their Caregivers.

Publications

Factors Associated with Supportive Care Service Use Among California Alzheimer's Disease Patients and Their Caregivers.

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