Dataset Information

Patient perspectives on key symptoms and preferences for follow-up after upper gastro-intestinal cancer surgery.

ABSTRACT:

Purpose

Long-lasting symptoms and reductions in quality of life are common after oesophago-gastric surgery. Post-operative follow-up has traditionally focussed on tumour recurrence and survival, but there is a growing need to also identify and treat functional sequelae to improve patients' recovery.

Methods

An electronic survey was circulated via a British national charity for patients undergoing oesophago-gastric surgery and their families. Patients were asked about post-operative symptoms they deemed important to their quality of life, as well as satisfaction and preferences for post-operative follow-up. Differences between satisfied and dissatisfied patients with reference to follow-up were assessed.

Results

Among 362 respondents with a median follow-up of 58 months since surgery (range 3-412), 36 different symptoms were reported as being important to recovery and quality of life after surgery, with a median of 13 symptoms per patient. Most (84%) respondents indicated satisfaction with follow-up. Satisfied patients were more likely to have received longer follow-up (5-year or longer follow-up 60% among satisfied patients vs 27% among unsatisfied, p < 0.001). These were also less likely to have seen a dietitian as part of routine follow-up (37% vs 58%, p = 0.005).

Conclusion

This patient survey highlights preferences regarding follow-up after oesophago-gastrectomy. Longer follow-up and dietician involvement improved patient satisfaction. Patients reported being concerned by a large number of gastrointestinal and non-gastrointestinal symptoms, highlighting the need for multidisciplinary input and a consensus on how to manage the poly-symptomatic patient.

SUBMITTER: Pucher PH

PROVIDER: S-EPMC9046299 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature

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Publications

Patient perspectives on key symptoms and preferences for follow-up after upper gastro-intestinal cancer surgery.

Pucher Philip H PH Coombes Annie A Evans Orla O Taylor Joanna J Moore Jonathan L JL White Annabelle A Lagergren Jesper J Baker Cara C Kelly Mark M Gossage James A JA Dunn Jason J Zeki Sebastian S Byrne Ben E BE Andreyev Jervoise J Davies Andrew R AR

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 20220311 6

<h4>Purpose</h4>Long-lasting symptoms and reductions in quality of life are common after oesophago-gastric surgery. Post-operative follow-up has traditionally focussed on tumour recurrence and survival, but there is a growing need to also identify and treat functional sequelae to improve patients' recovery.<h4>Methods</h4>An electronic survey was circulated via a British national charity for patients undergoing oesophago-gastric surgery and their families. Patients were asked about post-operativ ...[more]

PMID: 35275293

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Dataset Information

Patient perspectives on key symptoms and preferences for follow-up after upper gastro-intestinal cancer surgery.

Purpose

Methods

Results

Conclusion

Publications

Patient perspectives on key symptoms and preferences for follow-up after upper gastro-intestinal cancer surgery.

Similar Datasets

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