Dataset Information

Translation, cultural adaptation and validation of the facial disability index into Brazilian Portuguese.

ABSTRACT:

Introduction

Facial paralysis may occur due to a variety of causes. It is associated to the impairment of some basic daily activities such as eating, drinking, speaking and social communication, which affects the quality of life of these patients. The facial disability index is a short form auto reported outcome questionnaire used to assess patient with facial paralysis. It has been validated and proved to be superior to other general health related quality of life questionnaires.

Objective

We aim to do the cultural adaptation and validate the facial disability index into Brazilian Portuguese.

Methods

Translation and cultural-adaptation following the stages recommended by the International Society of Pharmacoeconomics Outcomes Research task force. The questionnaire was administered to 100 patients for evaluation of reliability and validation.

Results

The reliability of the Portuguese version of the facial disability index was found to be adequate, with a Cronbach's alfa coefficient of 0.73 for the complete scale. Intra-class correlation was 0.79 (95% CI: 0.71-0.85) and 0.85 (95% CI: 0.78-0.89) for the physical and social well-being subscales. There was a significant correlation between the social well-being subscale of the Portuguese version of the facial disability index and the social function and mental health components of the SF-36. There was also a correlation between the facial disability index and the degree of facial dysfunction according to the House-Brackmann global scale.

Conclusion

This adapted version of the facial disability index provides a valid and reliable instrument to assess the physical and psychosocial impact of facial nerve dysfunction in Brazilian-speaking patients.

SUBMITTER: Graciano AJ

PROVIDER: S-EPMC9422608 | biostudies-literature | 2020 Sep - Oct

REPOSITORIES: biostudies-literature

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Publications

Translation, cultural adaptation and validation of the facial disability index into Brazilian Portuguese.

Graciano Agnaldo J AJ Bonin Marcela M MM Mory Marion R MR Tessitore Adriana A Paschoal Jorge R JR Chone Carlos T CT

Brazilian journal of otorhinolaryngology 20190518 5

<h4>Introduction</h4>Facial paralysis may occur due to a variety of causes. It is associated to the impairment of some basic daily activities such as eating, drinking, speaking and social communication, which affects the quality of life of these patients. The facial disability index is a short form auto reported outcome questionnaire used to assess patient with facial paralysis. It has been validated and proved to be superior to other general health related quality of life questionnaires.<h4>Obj ...[more]

PMID: 31155347

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Project description:BackgroundConsideration of the quality of life in relation to individual health status is crucial for planning and maintaining a system of patient-centered care. Until recently, there have been no suitable instruments to assess health-related quality of life (HRQoL,) of children and adolescents with severe, non-ambulant cerebral palsy (GMFCS functional levels IV and V). The "Caregiver Priorities and Child Health Index of Life with Disabilities Questionnaire" (CPCHILD) was developed in English specifically for this population, and has been validated in Canada. The aim of this study was to translate and adapt the CPCHILD Questionnaire into Brazilian Portuguese, thus permitting researchers in Brazil to access this important tool for measuring HRQoL in this population, as well as the possibility of making comparisons with other studies that use the same questionnaire in other languages.MethodThe cross-cultural adaptation included two forward translations by independent translators, their synthesis, two back-translations by independent translators, an assessment of the versions by an expert committee and the development of a pre-final version, which was tested on 30 caregivers of children (5 -18) with severe cerebral palsy (GMFCS IV & V).ResultsDespite the relative equivalence between the two translations, some items required adaptations for the synthesized version. Certain modifications were necessary in the pre-final version to achieve idiomatic equivalence. The modifications were required to account for the socioeconomic and cultural levels of the target population.ConclusionThe translation and cross-cultural adaptation of the CPCHILD questionnaire provides a Brazilian Portuguese equivalent to measure the HRQoL of children with severe developmental disabilities, with the potential to measure the benefits of various procedures that are indicated for these patients. This adaptation exhibited a satisfactory level of semantic equivalence between the Portuguese target and the original English source versions. The validity of the Brazilian version of the instrument must be established in the future by assessing its psychometric properties on Brazilian epidemiological samples.

Dataset Information

Translation, cultural adaptation and validation of the facial disability index into Brazilian Portuguese.

Introduction

Objective

Methods

Results

Conclusion

Publications

Translation, cultural adaptation and validation of the facial disability index into Brazilian Portuguese.

Similar Datasets

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