Dataset Information

Barriers towards organ donor registration and consent among people of Indian origin living globally: a systematic review and integrative synthesis-protocol.

ABSTRACT:

Introduction

The need for organs is comparatively higher among people of Indian origin due to the higher prevalence of end-stage organ failure. In spite of the higher need, they have a lower number of organ donors. Studies have been carried out among people of Indian origin living globally to understand the reasons for the low donation rate, but there has been no systematic review that has integrated all of these studies to synthesise the current literature. Therefore, the purpose of this review is to examine the barriers towards organ donor registration and consent among Indians living globally.

Methods and analysis

A systematic search will be conducted using the following relevant databases namely CINHAL, MEDLINE, PsycINFO, Scopus, Web of Science, PubMed Central, Global Health and Grey literature. Studies from 1994 that satisfy our inclusion criteria will be included. Two reviewers will conduct the screening, data extraction and quality assessment of the studies; in event of any disagreement between the two reviewers at any stage, the third reviewer will reconcile any disagreements and consensus will be made.

Ethics and dissemination

As this study includes only secondary data, ethical approval for secondary data usage has been sought. This study will use Preferred Reporting Items for Systematic Review and Meta-Analysis guidelines to report and the study outcomes will be disseminated through a relevant peer-review publication, related conferences and also to various non-governmental organisations globally which are working with this particular community; following which further research can be developed based on this evidence and also helps in building a culturally competent strategy.

Prospero registration number

CRD42019155274.

SUBMITTER: Vincent BP

PROVIDER: S-EPMC7307552 | biostudies-literature | 2020 Jun

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Barriers towards organ donor registration and consent among people of Indian origin living globally: a systematic review and integrative synthesis-protocol.

Vincent Britzer Paul BP Randhawa Gurch G Cook Erica E

BMJ open 20200621 6

<h4>Introduction</h4>The need for organs is comparatively higher among people of Indian origin due to the higher prevalence of end-stage organ failure. In spite of the higher need, they have a lower number of organ donors. Studies have been carried out among people of Indian origin living globally to understand the reasons for the low donation rate, but there has been no systematic review that has integrated all of these studies to synthesise the current literature. Therefore, the purpose of thi ...[more]

PMID: 32565460

Similar Datasets

Project description:ObjectivesTo understand the barriers towards deceased organ donation among Indians living globally.DesignIntegrative systematic review using narrative synthesis.Data sourcesCINAHL, Medline full-text, PsycInfo, Scopus, Global Health, Web of Science, and PubMed Central, Indian Journal of Transplantation and Google Scholar.Time period1 January 1994 to 31 December 2021.ParticipantsIndividuals of Indian origin living globally.ResultsEighty-nine studies were included with more than 29 000 participants and quality of the studies were assessed using Joanna Briggs Institute's critical appraisal tool. Though majority of the participants had knowledge toward organ donation with a positive influence on willingness, the gap between knowledge and willingness was huge, with minimal registration influenced by the complex sociocultural constructs. Various sociocultural constructs such as family, fear and mistrust, religion, and bodily issues play a vital role. Differences were identified in willingness to donate and register between southern and other regions of India. Indian's organ donation behaviour in other geographical locations differed based on the socioreligious background of the country they lived in such as in Malaysia, Canada and the UK. However, they were collective in decision-making and had complex sociocultural interference irrespective of the country the individual lived which differed only in their next generations.ConclusionThough this study showed the complex relationship, and its influences on organ donation behaviour, lacunae were identified to further understand how such complex interactions determine or inform the behaviour. Also, methodological issues were identified, where this particular population outside India were collectively studied with their neighbouring population which are not homogenous. Studies in India majorly addressed a similar aim using similar methods which produced repetition of studies leading to lack of diversified, wider and in-depth research. Therefore, while this systematic review addressed the barriers toward organ donation among Indians living globally, it also informs various gaps in research and also methodological issues.Prospero registration numberCRD42019155274.

Dataset Information

Barriers towards organ donor registration and consent among people of Indian origin living globally: a systematic review and integrative synthesis-protocol.

Introduction

Methods and analysis

Ethics and dissemination

Prospero registration number

Publications

Barriers towards organ donor registration and consent among people of Indian origin living globally: a systematic review and integrative synthesis-protocol.

Similar Datasets

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